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36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss sixth edition [Hardback]

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  • Formāts: Hardback, 416 pages, height x width x depth: 229x152x34 mm, weight: 680 g, Not illustrated
  • Sērija : A Johns Hopkins Press Health Book
  • Izdošanas datums: 13-Jun-2017
  • Izdevniecība: Johns Hopkins University Press
  • ISBN-10: 1421422220
  • ISBN-13: 9781421422220
  • Hardback
  • Cena: 61,87 €
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  • Formāts: Hardback, 416 pages, height x width x depth: 229x152x34 mm, weight: 680 g, Not illustrated
  • Sērija : A Johns Hopkins Press Health Book
  • Izdošanas datums: 13-Jun-2017
  • Izdevniecība: Johns Hopkins University Press
  • ISBN-10: 1421422220
  • ISBN-13: 9781421422220

Through five editions, The 36-Hour Day has been the "bible" for families who love and care for people with Alzheimer disease. This book offers much-needed information and support to millions of people throughout the world. Whether a person has Alzheimer disease, vascular dementia, or another form of dementia, he or she will struggle with independent living and most likely face medical, behavioral, mood, and legal and financial problems. This essential resource will help family members and caregivers address all of these challenges and simultaneously cope with their own emotions and needs.

Thoroughly revised and updated, this sixth edition features easy-to-see take-away messages about every aspect of caregiving. Informed by new research into the causes of dementia and the search for therapies to prevent or cure dementia, this edition also includes new and expanded information on

• what we know about how to prevent dementia and the diseases that cause dementia;• new high-tech and low-tech devices to make life simpler and safer for people who have dementia;• behavioral and neuropsychiatric symptoms;• strategies for delaying symptoms in a person who has dementia;• changes in Medicare and other health care insurance laws;• changes in banking practices with regard to competency;• palliative care, hospice care, durable power of attorney, and guardianship;• Continuing Care at Home programs;• Parkinson’s related dementia;• dementia due to traumatic brain injury• choosing and moving a person to residential care; and• support groups for caregivers, friends, and family members

The central idea underlying the book—that much can be done to improve the lives of people with dementia and of those caring for them—remains the same. Still very much the book readers turn to, this fresh edition of The 36-Hour Day is the definitive guide for those who continue to love someone even after he or she has been changed by dementia.

Recenzijas

The 36-Hour Day, 6th edition, serves as an essential guidebook full of detailed, practical, and compassionate advice for those caring for a PWD. This edition, released 36 years after the original, continues to provide relevant, practical, and up-to-date advice to those providing care to an individual with memory loss. The 36-Hour Day continues to serve as the gold-standard care guide for millions of dementia caregivers. Kara B. Dassel, PhD, University of Utah, College of Nursing, The Gerontologist

Papildus informācija

We yearn for the day when there is no Alzheimer's, no Alzheimer patients, and no Alzheimer caregivers. Until then, there is The 36-Hour Day. -- Jeffrey Cummings, MD, ScD, Director, Cleveland Clinic Lou Ruvo Center for Brain Health Having lived the chapter and verse of The 36-Hour Day for twenty years, I know how this book empowers families with constructive and compassionate advice. This new edition offers definitive testament to the slow destructive force of Alzheimer's disease and how it challenges families caring for loved ones with dementia. It is a must read by all those who serve our aging generation. -- Meryl Comer, author of Slow Dancing with a Stranger: Lost and Found in the Age of Alzheimer's Thorough and compassionate, offering accessible information and practical advice, The 36-Hour Day is a necessary resource for families living with dementia. Still the gold standard, this book is the trusted reference that families turn to first-and over and over-for guidance and support in caring for someone with Alzheimer's disease. -- Lisa Genova, author of Still Alice From its knowing title to its knows-everything contents, The 36-Hour Day "gets" what you're going through. This encyclopedia of dementia care misses no aspect of life affected, from tough behaviors to challenged relationships to medication decisions -- describing each with both the honesty and compassion we caregivers deeply need. -- Paula Spencer Scott, author of Surviving Alzheimer's: Practical Tips and Soul-Saving Wisdom for Caregivers
Foreword xvii
Preface xix
Chapter 1 Dementia 1(12)
What Is Dementia?
5(3)
The Person Who Has Dementia
8(3)
Where Do You Go from Here?
11(2)
Chapter 2 Getting Medical Help for the Person Who Has Dementia 13(10)
The Evaluation of the Person with a Suspected Dementia
14(4)
Finding Someone to Do an Evaluation
18(1)
The Medical Treatment and Management of Dementia
19(4)
The Physician
19(1)
The Nurse
20(1)
The Social Worker
21(1)
The Geriatric Care Manager
22(1)
The Pharmacist
22(1)
Chapter 3 Characteristic Behavioral Symptoms in People Who Have Dementia 23(28)
The Brain, Behavior, and Personality: Why People Who Have Dementia Do the Things They Do
23(4)
Caregiving: Some General Suggestions
27(4)
Memory Problems
31(1)
Overreacting, or Catastrophic Reactions
32(5)
Combativeness
37(1)
Problems with Speech and Communication
38(6)
Problems the Person Who Has Dementia Experiences in Making Himself Understood
38(3)
Problems the Person Who Has Dementia Experiences in Understanding Others
41(3)
Loss of Coordination
44(4)
Loss of Sense of Time
48(1)
Symptoms That Are Better Sometimes and Worse at Other Times
49(2)
Chapter 4 Problems in Independent Living 51(17)
Mild Cognitive Impairment
51(3)
Managing the Early Stages of Dementia
52(2)
When a Person Must Give Up a Job
54(1)
When a Person Can No Longer Manage Money
55(1)
When a Person Can No Longer Drive Safely
56(4)
When a Person Can No Longer Live Alone
60(8)
When You Suspect That Someone Living Alone Is Developing Dementia
60(3)
What You Can Do
63(1)
Moving to a New Residence
64(4)
Chapter 5 Problems Arising in Daily Care 68(44)
Hazards to Watch For
68(7)
In the House
70(2)
Outdoors
72(1)
Riding in the Car
73(1)
Highways and Parking Lots
74(1)
Smoking
74(1)
Hunting
75(1)
Nutrition and Mealtimes
75(9)
Meal Preparation
75(1)
Mealtimes
76(2)
Problem Eating Behaviors
78(2)
Malnutrition
80(1)
Weight Loss
81(1)
Choking
82(1)
When to Consider Tube Feeding
83(1)
Exercise
84(2)
Recreation
86(4)
Meaningful Activity
89(1)
Personal Hygiene
90(7)
Bathing
91(3)
Locating Care Supplies
94(1)
Dressing
94(2)
Grooming
96(1)
Oral Hygiene
96(1)
Incontinence (Wetting or Soiling)
97(7)
Urinary Incontinence
98(3)
Bowel Incontinence
101(1)
Cleaning Up
102(2)
Problems with Walking and Balance; Falling
104(4)
Becoming Chairbound or Bedfast
105(2)
Wheelchairs
107(1)
Changes You Can Make at Home
108(4)
Should Environments Be Cluttered or Bare?
110(2)
Chapter 6 Medical Problems 112(25)
Pain
114(1)
Falls and Injuries
114(1)
Pressure Sores
115(1)
Dehydration
116(1)
Pneumonia
116(1)
Constipation
116(2)
Medications
118(3)
Dental Problems
121(1)
Vision Problems
122(1)
Hearing Problems
123(1)
Dizziness
124(1)
Visiting the Doctor
125(1)
If the Ill Person Must Enter the Hospital
126(2)
Seizures, Fits, or Convulsions
128(1)
Jerking Movements (Myoclonus)
129(1)
The Death of the Person Who Has Dementia
129(8)
The Cause of Death
130(1)
Dying at Home
130(1)
Hospice and Palliative Care
131(1)
Dying in the Hospital or Nursing Home
132(1)
When Should Treatment End?
132(2)
What Kind of Care Can Be Given at the End of Life?
134(3)
Chapter 7 Managing the Behavioral and Neuropsychiatric Symptoms of Dementia 137(35)
The Six R's of Behavior Management
138(1)
Concealing Memory Loss
139(2)
Wandering
141(9)
Why People Wander
141(2)
The Management of Wandering
143(7)
Sleep Disturbances and Night Wandering
150(3)
Worsening in the Evening ("Sundowning")
153(2)
Losing, Hoarding, or Hiding Things
155(1)
Rummaging in Drawers and Closets
156(1)
Inappropriate Sexual Behavior
156(3)
Repeating the Question
159(1)
Repetitious Actions
159(1)
Distractibility
160(1)
Clinging or Persistently Following You Around ("Shadowing")
161(1)
Complaints and Insults
162(3)
Taking Things
165(1)
Forgetting Telephone Calls
166(1)
Demands
166(2)
Stubbornness and Uncooperativeness
168(1)
When the Person Who Has Dementia Insults the Sitter
169(1)
Using Medication to Manage Behavior
170(2)
Chapter 8 Symptoms Associated with Mood Change and Suspiciousness 172(18)
Depression
172(1)
Complaints about Health
173(1)
Suicide
174(1)
Alcohol or Drug Abuse
174(1)
Apathy and Listlessness
175(1)
Remembering Feelings
176(1)
Anger and Irritability
176(2)
Anxiety, Nervousness, and Restlessness
178(2)
False Ideas, Suspiciousness, Paranoia, and Hallucinations
180(9)
Misinterpretation
180(1)
Failure to Recognize People or Things (Agnosia)
181(1)
"You Are Not My Husband"
182(1)
"My Mother Is Coming for Me"
182(1)
Suspiciousness
183(4)
Hiding Things
187(1)
Delusions and Hallucinations
187(2)
Having Nothing to Do
189(1)
Chapter 9 Special Arrangements If You Become Ill 190(4)
In the Event of Your Death
192(2)
Chapter 10 Getting Outside Help 194(21)
Help from Friends and Neighbors
194(1)
Finding Information and Services
195(2)
Kinds of Services
197(5)
Having Someone Come into Your Home
199(1)
Adult Day Care
199(2)
Short-Stay Residential Care
201(1)
Planning in Advance for Home Care, Day Care, and Respite Care
202(1)
When the Person Who Has Dementia Rejects the Care
202(3)
Your Own Feelings about Getting Respite for Yourself
205(2)
Locating Resources
207(2)
Paying for Care
209(2)
Should Respite Programs Mix People Who Have Different Problems?
211(1)
Determining the Quality of Services
212(2)
Research and Demonstration Programs
214(1)
Chapter 11 You and the Person Who Has Dementia 215(22)
Changes in Roles
217(5)
Understanding Family Conflicts
222(2)
Division of Responsibility
222(2)
Your Marriage
224(1)
Coping with Role Changes and Family Conflict
225(4)
A Family Conference
226(3)
When You Live Out of Town
229(1)
When You Are Not the Primary Caregiver, What Can You Do to Help?
230(2)
Caregiving and Your Job
232(1)
Your Children
233(4)
Teenagers
235(2)
Chapter 12 How Caring for a Person Who Has Dementia Affects You 237(24)
Emotional Reactions
237(14)
Anger
239(3)
Embarrassment
242(1)
Helplessness
243(1)
Guilt
243(3)
Laughter, Love, and Joy
246(1)
Grief
247(2)
Depression
249(1)
Isolation and Feeling Alone
250(1)
Worry
250(1)
Being Hopeful and Being Realistic
250(1)
Mistreating the Person Who Has Dementia
251(2)
Physical Reactions
253(1)
Fatigue
253(1)
Illness
253(1)
Sexuality
254(3)
If Your Spouse Has Dementia
254(2)
If Your Impaired Parent Lives with You
256(1)
The Future
257(3)
You as a Spouse Alone
258(2)
When the Person You Have Cared for Dies
260(1)
Chapter 13 Caring for Yourself 261(14)
Take Time Out
262(3)
Give Yourself a Present
263(1)
Friends
263(1)
Avoid Isolation
264(1)
Find Additional Help If You Need It
265(5)
Recognize the Warning Signs
265(3)
Counseling
268(2)
Joining with Other Families: The Alzheimer's Association
270(3)
Support Groups
271(1)
Excuses
272(1)
Advocacy
273(2)
Chapter 14 For Children and Teenagers 275(4)
Chapter 15 Financial and Legal Issues 279(16)
Your Financial Assessment
279(8)
Potential Expenses
280(1)
Potential Resources
281(6)
Where to Look for the Forgetful Person's Resources
287(3)
Legal Matters
290(5)
Chapter 16 Long-Term Care Arrangements 295(35)
Types of Living Arrangements
297(5)
Moving with the Person Who Has Dementia
302(1)
Nursing Homes
303(5)
Finding a Long-Term Care Setting outside the Home
308(11)
Paying for Care
310(2)
Guidelines for Selecting a Long-Term Care Facility
312(7)
Moving a Person to a Residential Care Facility
319(1)
Adjusting to a New Life
320(6)
Visiting
321(3)
Your Own Adjustment
324(2)
When Problems Occur in the Nursing Home or Other Residential Care Facility
326(2)
Sexual Issues in Nursing Homes or Other Care Facilities
328(2)
Chapter 17 Preventing and Delaying Cognitive Decline 330(8)
Usual Age-Associated Changes
330(1)
Recalling Words and Speed of Mental Performance
331(1)
Risk Factors Identify Potential Targets and Possible Approaches for Decreasing the Risk of Dementia
331(6)
Cardiovascular Factors
331(1)
Physical Exercise
332(1)
Social and Intellectual Activity
332(1)
Diet
333(1)
Education
334(1)
Diabetes
335(1)
Depression
335(1)
Toxins
335(1)
Head Injury
336(1)
Age
336(1)
Genetics
336(1)
Medications
337(1)
Summary
337(1)
Chapter 18 Brain Disorders and the Causes of Dementia 338(15)
Mild Cognitive Impairment
338(1)
Dementia
339(11)
Alcohol Use Disorder Associated Dementia
340(1)
Alzheimer Disease
341(2)
Amnestic (Korsakoff) Syndrome
343(1)
Cortico-basal Ganglionic Degeneration
343(1)
Depression
343(1)
The Frontotemporal Dementias
344(1)
HIV-AIDS
345(1)
Lewy Body Dementia
346(1)
Parkinson Disease Associated Dementia
347(1)
Primary Progressive Aphasia
347(1)
Progressive Supranuclear Palsy
347(1)
Traumatic Brain Injury (TBI or Head Trauma)
348(1)
Vascular Dementia
349(1)
Young or Early Onset Dementia
349(1)
Other Brain Disorders
350(3)
Delirium
350(1)
Stroke and Other Localized Brain Injury
351(1)
Transient Ischemic Attack
352(1)
Chapter 19 Research in Dementia 353(22)
Understanding Research
354(2)
Bogus Cures
356(1)
Research in Vascular Dementia and Stroke
356(1)
Research in Alzheimer Disease
357(7)
Structural Changes in the Brain
357(1)
Brain Cells
357(1)
Neuroplasticity
358(1)
Neurotransmitters
358(1)
Abnormal Proteins
359(1)
Abnormal Proteins within Brain Cells
359(1)
Infection
360(1)
Nerve Growth Factors
360(1)
Transplants of Brain Tissue
361(1)
Metals
361(1)
Prions
362(1)
Immunological Defects
362(1)
Head Trauma
363(1)
Drug Studies
363(1)
Epidemiology
364(1)
Down Syndrome
365(1)
Old Age
365(10)
Heredity
365(3)
Gender
368(1)
Neuropsychological Testing
368(1)
Brain Imaging
369(1)
Keeping Active
370(1)
The Effect of Acute Illness on Dementia
371(1)
Research into the Delivery of Services
371(1)
Protective Factors
372(1)
One Disease or Many?
373(2)
Index 375
Nancy L. Mace, MA, is retired. She was a consultant to and member of the board of directors of the Alzheimer's Association and an assistant in psychiatry and coordinator of the T. Rowe and Eleanor Price Teaching Service of the Department of Psychiatry and Behavioral Sciences of the Johns Hopkins University School of Medicine. Peter V. Rabins, MD, MPH, is a professor of the practice in the Erickson School of Aging Management Services at the University of Maryland, Baltimore County. He was the founding director of the geriatric psychiatry program and the first holder of the Richman Family Professorship of Alzheimer Disease and Related Disorders in the Department of Psychiatry and Behavioral Sciences of the Johns Hopkins University School of Medicine.