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Autism in Translation: An Intercultural Conversation on Autism Spectrum Conditions 2018 ed. [Hardback]

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  • Formāts: Hardback, 304 pages, height x width: 210x148 mm, weight: 549 g, XVIII, 304 p., 1 Hardback
  • Sērija : Culture, Mind, and Society
  • Izdošanas datums: 14-Sep-2018
  • Izdevniecība: Springer International Publishing AG
  • ISBN-10: 3319932926
  • ISBN-13: 9783319932927
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Autism in Translation: An Intercultural Conversation on Autism Spectrum Conditions 2018 ed.Palielināt
  • Formāts: Hardback, 304 pages, height x width: 210x148 mm, weight: 549 g, XVIII, 304 p., 1 Hardback
  • Sērija : Culture, Mind, and Society
  • Izdošanas datums: 14-Sep-2018
  • Izdevniecība: Springer International Publishing AG
  • ISBN-10: 3319932926
  • ISBN-13: 9783319932927
Citas grāmatas par šo tēmu:
Permanent link: https://www.kriso.lv/db/9783319932927.html
Keywords:
Autism is a complex phenomenon that is both individual and social. Showing both robust similarities and intriguing differences across cultural contexts, the autism spectrum raises innumerable questions about self, subjectivity, and society in a globalized world. Yet it is often misrepresented as a problem of broken bodies and disordered brains. So, in 2015, a group of interdisciplinary scholars gathered in Rio de Janeiro, Brazil for an intellectual experiment: a workshop that joined approaches from psychological anthropology to the South American tradition of Collective Health in order to consider autism within social, historical, and political settings. This book is the product of the ongoing conversation emerging from this event. It contains a series of comparative histories of autism policy in Italy, Brazil, and the United States; focuses on issues of voice, narrative, and representation in autism; and examines how the concept of autism shapes both individual lives and broader social and economic systems. 

Featuring contributions from:



Michael Bakan Benilton Bezerra Pamela Block M. Ariel Cascio  Jurandir Freire Costa Bįrbara Costa Andrada Cassandra Evans Elizabeth Fein  Clara Feldman  Roy Richard Grinker Rossano Lima Francisco Ortega Dawn Prince-Hughes Clarice Rios  Laura Sterponi  Thomas S. Weisner Enrico Valtellina
1 Introduction
1(16)
Elizabeth Fein
Clarice Rios
1.1 Where Did This Book Come From?
1(4)
1.2 The Event
5(3)
1.3 The Volume
8(2)
1.4 Broader Themes
10(7)
References
13(4)
Part I Political Histories of Autism
2 Autism Policy and Advocacy in Brazil and the USA
17(36)
Rossano Cabral Lima
Clara Feldman
Cassandra Evans
Pamela Block
2.1 Introduction
17(3)
2.2 Twentieth Century Institutionalization in the USA
20(1)
2.3 The Cultural Context of Deinstitutionalization in the USA
21(3)
2.4 Deinstitutionalization and the Emergence of the Autism "Crisis" in the USA
24(3)
2.5 "Exceptional Children" and the First Autistic Associations in Brazil
27(2)
2.6 The Brazilian Psychiatric Reform Movement
29(2)
2.7 The Rise of CAPSi and Its Impact on Autism Care
31(2)
2.8 Tensions and Misunderstandings Involving Parent Activists, Mental Health and Rehabilitation Professionals in Brazil
33(5)
2.9 Treatment, Education, and Rights of Autistic Children in the USA
38(5)
2.10 Conclusion
43(10)
References
46(7)
3 Psychiatric Reform and Autism Services in Italy and Brazil
53(36)
M. Ariel Cascio
Barbara Costa Andrada
Benilton Bezerra Jr.
3.1 Introduction
53(2)
3.2 Methods
55(1)
3.3 Psychiatric Reform in Italy and Brazil
56(1)
3.4 Deinstitutionalization in Italy: Democratic Psychiatry and Its Legacy of Inclusion
57(2)
3.5 Deinstitutionalization in Brazil: Psychiatric Reform and Psychoanalysis in the Context of Political Transformation
59(2)
3.6 Autism and Children's Mental Health: Challenges and Changes in PR
61(1)
3.7 Italy: Psychiatry, Democratic Psychiatry, and Neuropsychiatry
62(3)
3.8 Brazil: Pre-reform Ethos, Special Education and Post-reform Mental Health Services
65(3)
3.9 Autism Today: Local Controversies in Post-reform Contexts
68(1)
3.10 Autism Controversies in Brazil: Advocacy, Lived Experiences and the Paradigm of "Autism as a Disability"
69(3)
3.11 Italy: Advocacy, Lived Experiences, and the Paradigm of "Autism as a Way of Being"
72(5)
3.12 Conclusion
77(12)
References
81(8)
4 Commentary: "Why Not Both?" Negotiating Ideas About Autism in Italy, Brazil, and the US
89(20)
Francisco Ortega
4.1 Introduction: Autism and Global Mental Health
89(2)
4.2 Autism as "Problematic Category"
91(2)
4.3 Mobilizing Diagnostic Categories to Pragmatic Ends
93(6)
4.4 Beyond the Organicism/Anti-organicism Divide
99(2)
4.5 Conclusion
101(8)
References
103(6)
Part II Voice, Narrative and Representation
5 Music and Autism, Representation and Re-presentation: An Ethnomusicological Perspective
109(20)
Michael B. Bakan
5.1 Autism Spectrum Conditions and Neurodiversity
110(1)
5.2 Autism and Ethnomusicology, Then and Now
111(5)
5.3 Gordon Peterson, in His Own Words
116(3)
5.4 Concluding Thoughts
119(10)
References
126(3)
6 Autism as a Mode of Engagement
129(26)
Elizabeth Fein
6.1 What Do I Study When I Study Autism?
129(4)
6.2 Trains Just Got Swept Away by These Dynamic Animals
133(3)
6.3 The Numbers Do Not Lie, They Tell a Story
136(2)
6.4 He Will Come Out with Something from TV to Give Him the Words
138(4)
6.5 That Was from Something
142(4)
6.6 My Child Is a Toxic Waste Dump
146(9)
References
151(4)
7 Autism and First-Person Accounts: The Cognitive Problem
155(20)
Jurandir Freire Costa
Roy Richard Grinker
7.1 Introduction
155(2)
7.2 Meanings of Autistic Experience
157(2)
7.3 Cognitive Performance
159(2)
7.4 Fragments of Accounts
161(8)
7.4.1 Attfield
161(1)
7.4.2 Mukhopadhyay
161(1)
7.4.3 Fleischmann
162(1)
7.4.4 Tammet
163(1)
7.4.5 Higashida
164(1)
7.4.6 Blackman
165(1)
7.4.7 Mukhopadhyay and Barron
166(2)
7.4.8 Shore
168(1)
7.4.9 Barron
168(1)
7.5 Cognition Revisited
169(6)
References
173(2)
8 Commentary: Words, Voice, Silence
175(10)
Laura Sterponi
8.1 Words
175(3)
5.2 Voice
178(1)
8.3 Silence
179(6)
References
181(4)
Part III The Autism Concept
9 Expert on Your Own Child, Expert on Your Own World---Reinventing Autism Expertise(s)
185(22)
Clarice Rios
9.1 Introduction
185(2)
9.2 The Research
187(1)
9.3 From "Specialized Treatment" to Autism Expertise
188(4)
9.4 Expertise in Context: Who Is an Expert After All?
192(5)
9.5 Experts in What? Raising A(n Autistic) Child in Rio de Janeiro
197(3)
9.6 A Context Sensitive Model of Autism Expertise
200(7)
References
205(2)
10 A.S.: Classification, Interpellation
207(24)
Enrico Valtellina
10.1 Introduction
207(1)
10.2 The Diagnosis
208(1)
10.3 The Diagnosis as Classification
209(3)
10.4 Aspergers Syndrome/AS
212(4)
10.5 Diagnosis as Event
216(4)
10.6 "Hey, You There!" Ideology Interpellates Individuals as Subjects
220(11)
References
226(5)
11 Who Owns Autism? Economics, Fetishism, and Stakeholders
231(20)
Roy Richard Grinker
11.1 Introduction
231(2)
11.2 Prevalence and the Growth of Expertise
233(6)
11.3 Fetishism
239(6)
11.4 Conclusion
245(6)
References
247(4)
12 Commentary: What Are We Talking About When We Talk About Autism?
251(12)
M. Ariel Cascio
12.1 A Cultural Constructivist View of Autism
251(2)
12.2 The Autism Concept
253(1)
12.3 Exploring Classic Anthropological Questions
254(9)
References
259(4)
Part IV Closing Commentaries
13 Psychological Anthropology and the Study of Disability
263(20)
Thomas S. Weisner
13.1 Introduction
263(1)
13.2 Difference Due to Disability Is Biological and Social
264(2)
13.3 The Experiences of Disability Matter
266(2)
13.4 Cultural Beliefs and Practices Regarding Disability Vary Widely Around the World
268(3)
13.5 Social and Sociolinguistic Mechanisms Important for Understanding ASD and Other Disability also Are Important for Studying Many Other Topics in Psychological Anthropology
271(2)
13.6 Family and Parenting in Response to Disability and Mental Illness Matter for Development: The Daily Routine and the Power of Activities and Institutional and Structural Conditions
273(6)
13.7 Final Comments
279(4)
References
279(4)
14 Joy
283(8)
Dawn Prince-Hughes
Index 291
Elizabeth Fein, Ph.D., is Assistant Professor of Psychology at Duquesne University, USA. Dr. Fein is a psychological anthropologist and licensed clinical psychologist who uses clinical ethnography to explore the intersections of culture and neurodevelopmental difference. 

Clarice Rios, Ph.D., is Lecturer in Social Psychology at the Federal University of Rio de Janeiro (UFRJ), Brazil. A psychological anthropologist, her current research explores the biopolitics of autism treatment within the Brazilian Unified Health System.