Taking a different approach to biobanks, this book draws attention to their political and governance implications. It argues that for biobanks to be created, shaped, maintained, and to operate properly, a number of interrelated conditions need to exist, from legal environment to funding mechanisms and social acceptance.
In recent years, a number of large population-based biobanks genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated.
Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia, and Australia. This book explores:
- the interrelated conditions needed for a biobank to be created and to exist
- the rise of the new bio-economy
- the redefinition of citizenship accompanying national biobank developments
This groundbreaking book makes clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics, and the reshaping of current practices in governance. It will be a valuable read for scholars and students of genetics, bioethics, risk, public health and the sociology of health and illness.
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