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Disability Bioethics Reader [Mīkstie vāki]

Edited by (Georgetown University, USA), Edited by
  • Formāts: Paperback / softback, 418 pages, height x width: 254x178 mm, weight: 780 g, 2 Line drawings, black and white; 2 Illustrations, black and white
  • Izdošanas datums: 10-Jun-2022
  • Izdevniecība: Routledge
  • ISBN-10: 0367220032
  • ISBN-13: 9780367220037
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  • Formāts: Paperback / softback, 418 pages, height x width: 254x178 mm, weight: 780 g, 2 Line drawings, black and white; 2 Illustrations, black and white
  • Izdošanas datums: 10-Jun-2022
  • Izdevniecība: Routledge
  • ISBN-10: 0367220032
  • ISBN-13: 9780367220037
Citas grāmatas par šo tēmu:
The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability.

Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as:











state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice.

The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studiesscholarship that spans the social sciences and humanitiesand gives serious consideration to the history of disability activism.

Recenzijas

"Covers an impressive range of topics. . . [ and] a wealth of diversity in issues, perspectives, and arguments . . . . Overall, this book is an excellent resource, and should be considered by those designing university courses relating to bioethics [ and] medical law and ethics." Heloise Robinson in Medical Law Review

The Disability Bioethics Reader provides a much-needed course correction for the field [ of bioethics] and contains context that should be provided via graduate and undergraduate bioethics courses, medical school curricula, and continuing medical education courses. Practitioners, educators, and scholars alike would benefit from the authors careful consideration of the intersections between bioethics and disability. Heather Swadley, Lehigh University

List of Tables
ix
List of Figures
x
Notes on Contributors xi
Disability Bioethics: Introduction to The Disability Bioethics Reader 1(8)
Joel Michael Reynolds
Christine Wieseler
PART I History, Medicine, and Disability
9(30)
1 A Short History of Modern Medicine and Disability
11(10)
Michael Rembis
2 Eugenics, Disability, and Bioethics
21(9)
Robert A. Wilson
3 Theories of Disability
30(9)
Joel Michael Reynolds
PART II Bioethics: Past and Present
39(32)
4 A Critical History of Bioethics
41(9)
John H. Evans
5 Methods of Bioethics
50(11)
Alison Reiheld
6 Disability Bioethics: From Theory to Practice
61(10)
Rosemarie Garland-Thomson
PART III Philosophy of Medicine and Phenomenology
71(22)
7 Disability and the Definition of Health
73(9)
Sean Aas
8 The Lived Experiences of Illness and Disability
82(11)
Havi Carel
PART IV Prenatal Testing and Abortion
93(42)
9 Abortion, Disability Rights, and Reproductive Justice
95(8)
Elizabeth Dietz
10 A Fatal Attraction to Normalizing: Treating Disabilities as Deviations from "Species-Typical" Functioning
103(13)
Anita Silvers
11 Being Disabled and Contemplating Disabled Children
116(9)
Jackie Leach Scully
12 The Wrongs of `Wrongful Birth': Disability, Race, and Reproductive Justice
125(10)
Desiree Valentine
PART V Disability, the Life Course, and Well-Being
135(46)
13 Disability, Ideology, and Quality of Life: A Bias in Biomedical Ethics
137(10)
Ron Amundson
14 The Case of Chronic Pain
147(9)
Emma Sheppard
15 Chronic Illness, Well-Being, and Social Values
156(14)
Lydia Nunez Landry
16 Disability and Age Studies: Obstacles and Opportunities
170(11)
Erin Gentry Lamb
PART VI Issues at the Edge and End of Life
181(52)
17 Death, Pandemic, and Intersectionality: What the Failures in an End-of-Life Case Can Teach about Structural Justice and COVID-19
183(8)
Yolonda Wilson
18 Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic: Even the Best of Intentions Can Lead to Bias
191(12)
Joseph J. Fins
19 Bioethical Issues in Dementia and Alzheimer's Disease
203(9)
Tia Powell
20 Between "Aid in Dying" and "Assisted Suicide": Disability Bioethics and the Right to Die
212(9)
Harold Braswell
21 Theorizing the Intersections of Ableism, Sanism, Ageism and Suicidism in Suicide and Physician-Assisted Death Debates
221(12)
Alexandre Baril
PART VII Disability, Difference, and Health Care
233(38)
22 Disability Bioethics and Race
235(8)
Andrea J. Pitts
23 Bioethics and the Deaf Community
243(11)
Teresa Blankmeyer Burke
24 Hunger Always Wins: Contesting the Medicalization of Fat Bodies
254(9)
Anna Mallow
25 Trans Care within and against the Medical-Industrial Complex
263(8)
Hil Malatino
PART VIII Intellectual and Mental Disabilities
271(42)
26 Defining Mental Illness and Psychiatric Disability
273(9)
Laura Guidry-Grimes
27 Research Ethics and Intellectual Disability: Finding the Middle Ground between Protection and Exclusion
282(10)
Kevin Mintz
David Wasserman
28 Inconvenient Complications to Patient Choice and Psychiatric Detention: An Auto-ethnographic Account of Mad Carework
292(9)
Erica Hua Fletcher
29 Disability Bioethics, Ashley X, and Disability Justice for People with Cognitive Impairments
301(12)
Christine Wieseler
PART IX Disability Bioethics: Connections and New Directions
313(30)
30 Feminist Theorizing and Disability Bioethics
315(9)
Lauren Guilmette
31 Disability Bioethics and Epistemic Injustice
324(9)
Anita Ho
32 Disability Studies Meets Animal Studies
333(10)
David M. Pena-Guzmdn
PART X The Ends of Medicine: Caring, Curing, and Justice
343(48)
33 Improving Access within the Clinic
345(13)
Nicole D. Agaronnik
Lisa I. Iezzoni
34 The Goals of Biomedical Technology
358(9)
Joseph A. Stramondo
35 "Why Insist on Justice, Why Not Settle for Kindness?" Kindness, Justice, and Cognitive Disability
367(10)
Eva Feder Kittay
36 Selections of Brilliant Imperfection
377(14)
Eli Clare
Index 391
Joel Michael Reynolds is Assistant Professor of Philosophy and Disability Studies at Georgetown University, Senior Research Scholar in the Kennedy Institute of Ethics, Senior Advisor to The Hastings Center, and core faculty in Georgetowns Disability Studies Program. Reynolds is author of The Life Worth Living: Disability, Pain, and Morality (University of Minnesota Press), the founder of The Journal of Philosophy of Disability, and co-founder of the Oxford Studies in Disability, Ethics, and Society book series from Oxford University Press.

Christine Wieseler is Assistant Professor of Philosophy at California State Polytechnic University, Pomona. Wieseler is author of articles published in Hypatia, IJFAB: International Journal of Feminist Approaches to Bioethics, and Social Philosophy Today as well as chapters in two edited book collections.