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ix | |
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Notes on Contributors |
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xi | |
Disability Bioethics: Introduction to The Disability Bioethics Reader |
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1 | (8) |
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PART I History, Medicine, and Disability |
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9 | (30) |
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1 A Short History of Modern Medicine and Disability |
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11 | (10) |
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2 Eugenics, Disability, and Bioethics |
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21 | (9) |
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30 | (9) |
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PART II Bioethics: Past and Present |
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39 | (32) |
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4 A Critical History of Bioethics |
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41 | (9) |
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50 | (11) |
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6 Disability Bioethics: From Theory to Practice |
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61 | (10) |
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Rosemarie Garland-Thomson |
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PART III Philosophy of Medicine and Phenomenology |
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71 | (22) |
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7 Disability and the Definition of Health |
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73 | (9) |
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8 The Lived Experiences of Illness and Disability |
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82 | (11) |
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PART IV Prenatal Testing and Abortion |
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93 | (42) |
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9 Abortion, Disability Rights, and Reproductive Justice |
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95 | (8) |
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10 A Fatal Attraction to Normalizing: Treating Disabilities as Deviations from "Species-Typical" Functioning |
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103 | (13) |
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11 Being Disabled and Contemplating Disabled Children |
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116 | (9) |
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12 The Wrongs of `Wrongful Birth': Disability, Race, and Reproductive Justice |
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125 | (10) |
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PART V Disability, the Life Course, and Well-Being |
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135 | (46) |
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13 Disability, Ideology, and Quality of Life: A Bias in Biomedical Ethics |
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137 | (10) |
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14 The Case of Chronic Pain |
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147 | (9) |
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15 Chronic Illness, Well-Being, and Social Values |
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156 | (14) |
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16 Disability and Age Studies: Obstacles and Opportunities |
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170 | (11) |
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PART VI Issues at the Edge and End of Life |
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181 | (52) |
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17 Death, Pandemic, and Intersectionality: What the Failures in an End-of-Life Case Can Teach about Structural Justice and COVID-19 |
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183 | (8) |
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18 Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic: Even the Best of Intentions Can Lead to Bias |
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191 | (12) |
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19 Bioethical Issues in Dementia and Alzheimer's Disease |
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203 | (9) |
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20 Between "Aid in Dying" and "Assisted Suicide": Disability Bioethics and the Right to Die |
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212 | (9) |
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21 Theorizing the Intersections of Ableism, Sanism, Ageism and Suicidism in Suicide and Physician-Assisted Death Debates |
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221 | (12) |
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PART VII Disability, Difference, and Health Care |
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233 | (38) |
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22 Disability Bioethics and Race |
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235 | (8) |
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23 Bioethics and the Deaf Community |
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243 | (11) |
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24 Hunger Always Wins: Contesting the Medicalization of Fat Bodies |
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254 | (9) |
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25 Trans Care within and against the Medical-Industrial Complex |
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263 | (8) |
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PART VIII Intellectual and Mental Disabilities |
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271 | (42) |
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26 Defining Mental Illness and Psychiatric Disability |
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273 | (9) |
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27 Research Ethics and Intellectual Disability: Finding the Middle Ground between Protection and Exclusion |
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282 | (10) |
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28 Inconvenient Complications to Patient Choice and Psychiatric Detention: An Auto-ethnographic Account of Mad Carework |
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292 | (9) |
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29 Disability Bioethics, Ashley X, and Disability Justice for People with Cognitive Impairments |
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301 | (12) |
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PART IX Disability Bioethics: Connections and New Directions |
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313 | (30) |
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30 Feminist Theorizing and Disability Bioethics |
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315 | (9) |
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31 Disability Bioethics and Epistemic Injustice |
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324 | (9) |
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32 Disability Studies Meets Animal Studies |
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333 | (10) |
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PART X The Ends of Medicine: Caring, Curing, and Justice |
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343 | (48) |
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33 Improving Access within the Clinic |
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345 | (13) |
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34 The Goals of Biomedical Technology |
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358 | (9) |
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35 "Why Insist on Justice, Why Not Settle for Kindness?" Kindness, Justice, and Cognitive Disability |
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367 | (10) |
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36 Selections of Brilliant Imperfection |
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377 | (14) |
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Index |
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391 | |