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The Gene Machine: How Genetic Technologies Are Changing the Way We Have Kids--and the Kids We Have [Hardback]

3.90/5 (134 ratings by Goodreads)
  • Formāts: Hardback, 288 pages, height x width x depth: 237x159x26 mm, weight: 500 g, Notes, Index
  • Izdošanas datums: 28-Feb-2017
  • Izdevniecība: Farrar, Straus & Giroux Inc
  • ISBN-10: 0374160783
  • ISBN-13: 9780374160784
Citas grāmatas par šo tēmu:
  • Formāts: Hardback, 288 pages, height x width x depth: 237x159x26 mm, weight: 500 g, Notes, Index
  • Izdošanas datums: 28-Feb-2017
  • Izdevniecība: Farrar, Straus & Giroux Inc
  • ISBN-10: 0374160783
  • ISBN-13: 9780374160784
Citas grāmatas par šo tēmu:
A researched exploration of the promises and vulnerabilities of having children in an age of genetic tests and interventions considers key scientific, technological and political factors while sharing the stories of men and women struggling to understand the range of the tests and their revelations.

A sharp-eyed guide to the promise and peril of having children in an age of genetic tests and interventions

Is DNA testing a triumph of modern medicine or a Pandora’s box of possibilities? Is screening for disease in an embryo a humane form of family planning or a slippery slope toward eugenics? And, more practically, how do we navigate the dizzying and expanding array of tests available, with more appearing every day?

In The Gene Machine, the award-winning journalist Bonnie Rochman addresses these questions and more, guiding us through the new frontiers of gene technology and how it has forever changed medicine, bioethics, and the factors that shape a family. Rochman takes an authoritative look at the latest hot-button issues in the world of pre- and postnatal testing and tells the stories of women and men struggling to understand the variety of tests and grappling with their results—revelations that are sometimes joyous, sometimes heartbreaking, and often profound.

Propelled by human narratives and meticulously reported, The Gene Machine introduces us to scientists working to unlock the secrets of the human genome; gene counselors and spiritual advisers helping parents manage this complex new reality; and, of course, parents themselves, including the author, who glimpse the genetic futures of their children. The Gene Machine is both a scientific road map and a meditation on our power to shape the future, one that gets to the very core of what it means to be human.

Papildus informācija

A sharp-eyed exploration of the promise and peril of having children in an age of genetic tests and interventions
Introduction 3(14)
1 How the Jews Beat Tay-Sachs: Screening for Disease Before Pregnancy
17(28)
2 Playing God: How Preimplantation Genetic Diagnosis Is Rewriting Family History
45(28)
3 The Other Scarlet "A": Abortion's Relationship to Genetic Testing
73(28)
4 Silencing a Gene: The Future of Down Syndrome
101(26)
5 What Do Parents Want to Know? Grappling with Variants of Uncertain Significance
127(26)
6 The Right to an Open Future: Navigating the Return of Results
153(26)
7 How to Hunt a Zebra: Ending the Rare-Disease Diagnostic Odyssey
179(24)
8 The Genie in the Bottle: Sequencing Newborn Babies
203(28)
Notes 231(26)
Acknowledgments 257(4)
Index 261
Bonnie Rochman is an award-winning journalist. A former health and medicine columnist for Time magazine, she has written for The New York Times Magazine, The Wall Street Journal, NBC News, Scientific American, and O, The Oprah Magazine. She lives in Seattle with her husband and three children. Follow her on Twitter at @brochman.