Preface to the Second Edition |
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xiii | |
Contributors |
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xvii | |
How These Guidelines Are Organized |
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xxiii | |
Introduction |
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1 | (8) |
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The Function and Sources of These Ethics Guidelines |
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2 | (1) |
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Legal and Ethical Consensus Informing These Guidelines: Rights, Protections, and Key Philosophical Distinctions |
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3 | (6) |
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Part One Framework and Context |
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9 | (24) |
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Section 1 Ethics Goals for Good Care When Patients Face Decisions about Life-Sustaining Treatment or Approach the End of Life |
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11 | (8) |
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Section 2 Ethics Education Competencies for Health Care Professionals Caring for Patients Facing Decisions about Life-Sustaining Treatment or Approaching the End of Life |
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19 | (4) |
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Section 3 Organizational Systems Supporting Good Care and Ethical Practice |
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23 | (2) |
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Section 4 Social, Economic, and Legal Contexts |
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25 | (8) |
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25 | (3) |
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28 | (3) |
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C State and Federal Context |
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31 | (2) |
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Part Two Guidelines on Care Planning and Decision-Making |
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33 | (96) |
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Section 1 Guidelines for Advance Care Planning and Advance Directives: Using Patient Preferences to Establish Goals of Care and Develop the Care Plan |
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35 | (8) |
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Section 2 Guidelines for the Decision-Making Process |
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43 | (24) |
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44 | (2) |
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B Determining Decision-Making Capacity |
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46 | (2) |
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C Identifying the Key Decision-Maker |
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48 | (1) |
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D Surrogate Decision-Making |
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48 | (6) |
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E Making the Decision at Hand |
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54 | (5) |
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F Documenting the Decision |
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59 | (3) |
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G Implementing the Decision |
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62 | (1) |
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H Changing Treatment Decisions |
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63 | (1) |
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I Conflicts and Challenges Related to Treatment Decision-Making |
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63 | (4) |
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Section 3 Guidelines Concerning Neonates, Infants, Children, and Adolescents |
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67 | (22) |
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A General Guidelines for Pediatric Decision-Making Concerning the Use of Life-Sustaining Treatments |
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72 | (7) |
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B Guidelines for Decision-Making and Care Involving Nonviable Neonates and Neonates at the Threshold of Viability |
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79 | (3) |
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C Guidelines for Decision-Making about Life-Sustaining Treatment for Viable Neonates |
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82 | (1) |
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D Guidelines for Decision-Making about Life-Sustaining Treatment for Young Children |
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83 | (1) |
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E Guidelines for Decision-Making with Older Children |
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84 | (1) |
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F Guidelines for Decision-Making with Adolescents |
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85 | (1) |
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G Guidelines for Decision-Making by Mature Minors and Emancipated Minors |
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86 | (3) |
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Section 4 Guidelines for Care Transitions |
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89 | (16) |
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A General Guidelines for Hand-Offs between Professionals and Transfers Across Care Settings |
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90 | (2) |
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B Guidelines on Care Transitions for Nursing Home Residents |
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92 | (4) |
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C Guidelines on Portable Medical Orders |
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96 | (3) |
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D Guidelines on Discharge Planning and Collaboration with Nursing Homes, Home Care, Hospice, and Outpatient Care |
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99 | (3) |
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E Guidelines on Care Transitions for Patients Who Will Die in the Hospital |
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102 | (3) |
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Section 5 Guidelines for the Determination of Death |
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105 | (6) |
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A Procedural Guidelines for Making a Determination of Death and for Making a Declaration of Death |
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106 | (3) |
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B The Determination of Death: Continuing Ethical Debates |
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109 | (2) |
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Section 6 Guidelines for Institutional Policy |
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111 | (18) |
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A Guidelines on Ethics Services in Institutions Providing Care for Patients Facing Decisions about Life-Sustaining Treatment or Approaching the End of Life |
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112 | (4) |
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B Guidelines on Palliative Care Services |
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116 | (3) |
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C Guidelines Supporting Advance Care Planning |
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119 | (2) |
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D Guidelines Supporting Portable Medical Orders |
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121 | (1) |
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E Guidelines Supporting Care Transitions |
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122 | (2) |
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F Guidelines on the Role of Institutional Legal Counsel and Risk Management in Supporting Good Care |
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124 | (1) |
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G Guidelines on Conflict Resolution |
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125 | (4) |
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Part Three Communication Supporting Decision-Making and Care |
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129 | |
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Section 1 Communication with Patients, Surrogates, and Loved Ones |
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131 | (8) |
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A Conducting a Family Conference When a Patient's Condition Is Deteriorating |
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132 | (3) |
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B Supporting the Decision-Maker When Loved Ones Disagree |
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135 | (1) |
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C Discussing Values Concerning Nutrition and Hydration |
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136 | (1) |
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D Using Electronic and Telephone Communications with Seriously Ill Patients or with Surrogates and Loved Ones |
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137 | (2) |
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Section 2 Communication and Collaboration with Patients with Disabilities |
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139 | (6) |
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A Life-Sustaining Treatments and Accommodation of Stable or Progressive Disabilities |
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140 | (1) |
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B Communication When a Patient's Disability Affects Speech |
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140 | (1) |
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C Communication When a Patient's Disability Affects Cognition |
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141 | (1) |
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D Communication and Collaboration with Recently Disabled Patients Concerning Life-Sustaining Treatments |
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142 | (3) |
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Section 3 Psychological Dimensions of Decision-Making about Life-Sustaining Treatment and Care Near the End of Life |
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145 | (10) |
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A Coping as a Factor in Treatment Decision-Making |
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146 | (1) |
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B Hope as a Factor in Treatment Decision-Making |
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146 | (2) |
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C Ambivalence, Denial, and Grief as Factors in Treatment Decision-Making |
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148 | (1) |
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D Existential Suffering as a Factor in Treatment Decision-Making |
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149 | (1) |
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E Spirituality and Religion as Factors in Treatment Decision-Making |
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149 | (1) |
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F Religious Objections During Treatment Decision-Making |
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150 | (1) |
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G Moral Distress as a Factor in Treatment Decision-Making |
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151 | (2) |
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H Integrating Bereavement Care for Loved Ones and Professionals into Care Near the End of Life |
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153 | (2) |
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Section 4 Decision-Making Concerning Specific Treatments and Technologies |
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155 | |
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A Forgoing Life-Sustaining Treatments: Ethical and Practical Considerations for Clinicians |
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155 | (2) |
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B Brain Injuries and Neurological States |
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157 | (4) |
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161 | |