| Acknowledgements |
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ix | |
| Introduction |
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xi | |
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Part 1 The Person in the Age of Telecare |
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1 | (34) |
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Chapter 1 The Advent of Digital Healthcare |
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3 | (16) |
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1.1 Digital healthcare as an ecosystem |
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3 | (10) |
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l.2 Telemedicine: medicine without patients? |
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13 | (2) |
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1.3 Telemonitoring of chronic diseases: a national priority |
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15 | (1) |
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1.4 Specific features of telecare |
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16 | (3) |
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Chapter 2 The Human Ethical Challenge |
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19 | (16) |
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2.1 Ethical background of telecare |
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22 | (3) |
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2.2 Circumscribing the field of influence of medical ethics |
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25 | (4) |
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2.2.1 Communication between doctor and patient |
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25 | (3) |
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2.2.2 The contribution of care ethics |
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28 | (1) |
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2.3 The person in telecare |
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29 | (6) |
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Part 2 Telecare Phenomenology |
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35 | (152) |
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37 | (2) |
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Chapter 3 A Cross-dimensional Look at the "Patient Experience" |
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39 | (36) |
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3.1 Medico-economic evaluations and feedback |
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42 | (2) |
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3.2 Evaluation is the key to deployment |
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44 | (3) |
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3.3 MAST and RENEWING HeALTH |
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47 | (2) |
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3.4 Toward a psycho-emotional approach to quality of life |
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49 | (9) |
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3.4.1 The SF-36 questionnaire |
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50 | (8) |
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3.5 Techniques and self-experience |
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58 | (5) |
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3.6 The telepatient: the neutral object of a symptom to be deciphered? |
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63 | (8) |
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3.7 Temporality and sensitivity at the heart of the experience |
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66 | (5) |
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3.8 A renewed sense of patient experience |
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71 | (4) |
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Chapter 4 The Patient Experience under Telemonitoring |
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75 | (26) |
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76 | (8) |
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4.2 Autonomous home dialysis telemonitoring |
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84 | (6) |
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90 | (6) |
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4.4 Medical telemonitoring: an objectifying practice? |
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96 | (5) |
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Chapter 5 The Person Standing the Test of Digital Clocks |
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101 | (32) |
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5.1 Synchronized participants in a network |
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102 | (6) |
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5.2 The cardiac patient: "real-time" data producer |
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108 | (4) |
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5.3 Renal failure or the "chrono-responsible" patient |
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112 | (8) |
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5.3.1 Application for prevention and monitoring |
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114 | (1) |
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5.3.2 Preventive action (non-dialyzed patient) |
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115 | (2) |
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5.3.3 Follow-up action (dialysis patient) |
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117 | (2) |
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5.3.4 A "chrono-responsible" patient |
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119 | (1) |
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5.4 Diabetic patient as "synchronized interactive patient" |
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120 | (4) |
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5.4.1 A self-learning application |
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120 | (2) |
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5.4.2 The telepatient as an "interactive" patient |
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122 | (2) |
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5.5 Compliance and concordance |
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124 | (3) |
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5.6 Harmonizations and phase shifts |
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127 | (6) |
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Chapter 6 Experiential Knowledge of the "Subject of Care" |
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133 | (54) |
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6.1 Constructing links with patients |
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134 | (7) |
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6.1.1 Representativeness of the panel |
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135 | (4) |
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6.1.2 Preparation and scope of the interviews |
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139 | (1) |
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6.1.3 Presentation of the project to the patients |
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139 | (2) |
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6.2 Wearing a heart defibrillator |
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141 | (15) |
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6.2.1 "Les Porteurs" patient association |
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141 | (1) |
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6.2.2 Association de Porteurs de defibrillateurs cardiaques |
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141 | (1) |
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142 | (1) |
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6.2.4 Pacemakers and implantable automatic defibrillators |
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143 | (2) |
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145 | (1) |
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6.2.6 Experience of the protocol |
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146 | (3) |
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149 | (7) |
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6.3 Performing daily home dialysis |
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156 | (10) |
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6.3.1 "Renaloo" patient association |
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156 | (1) |
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6.3.2 "Calydial" association |
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157 | (1) |
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6.3.3 Tenon Hospital (AP-HP- 75) and other actors |
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157 | (1) |
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6.3.4 The cyclers and communicating objects |
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158 | (1) |
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159 | (1) |
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160 | (1) |
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6.3.7 Specifics of the protocol |
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161 | (1) |
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6.3.8 Words from people in independent home dialysis |
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162 | (4) |
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6.4 Managing diabetes independently |
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166 | (8) |
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166 | (1) |
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6.4.2 "Calydial" association |
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167 | (2) |
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169 | (1) |
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6.4.4 Interviewees (and collected testimonies) |
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170 | (1) |
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6.4.5 Opinions of people under independent home insulin therapy |
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171 | (3) |
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6.5 Recognizing the patient as a human and co-caregiver |
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174 | (3) |
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6.6 Expanding on the recognition of self-management skills |
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177 | (1) |
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6.7 Sharing the feeling of telecare |
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178 | (5) |
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178 | (2) |
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6.7.2 Psychological support |
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180 | (1) |
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6.7.3 Information sharing |
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181 | (1) |
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182 | (1) |
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6.7.5 Relationship to the disease |
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182 | (1) |
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6.8 Reconsidering the order of the person |
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183 | (1) |
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6.9 Toward a biopsychosocial telecare model |
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184 | (3) |
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Part 3 Toward an Ethics of "Time-sensitive" Telecare |
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187 | (54) |
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189 | (2) |
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Chapter 7 Subjectivizing the Future: or, the "Patient-Project" Temporality |
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191 | (32) |
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7.1 Anatomy of anticipation |
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195 | (1) |
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7.2 The clocks that govern us |
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196 | (4) |
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200 | (1) |
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7.4 Shift in patient experience: stress and incoordination |
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201 | (3) |
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7.5 Affects as regulators |
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204 | (4) |
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208 | (2) |
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7.7 Anticipation as action project |
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210 | (1) |
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7.8 "Affordance" as an anticipation vector |
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211 | (4) |
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7.9 The patient as poiesis and self-project |
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215 | (2) |
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7.10 The project as a balancing dynamic |
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217 | (3) |
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7.11 The meaning of the joint entry of the temporal and emotional |
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220 | (3) |
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Chapter 8 "Chrono-sensitivity": From Concept to Ethics |
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223 | (18) |
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8.1 Telecare as "chrono-technology" |
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224 | (4) |
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8.2 Telecare as a relational practice |
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228 | (1) |
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8.3 Chrono-sensitivity: a hybrid concept |
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229 | (1) |
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8.4 Ethical foundations of chrono-sensitive telecare |
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230 | (4) |
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8.4.1 Autonomy and humanity of telecare |
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231 | (3) |
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8.5 Care ethics tuned to telecare |
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234 | (7) |
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8.5.1 Normative evaluation of the chrono-sensitive telecare |
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240 | (1) |
| Conclusion |
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241 | (4) |
| List of Abbreviations |
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245 | (8) |
| References |
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253 | (16) |
| Index |
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269 | |
