In the tradition of Atul Gwandes Being Mortal, this compassionate work helps individuals develop a more accepting view of dying while teaching them what to expect and how to navigate the healthcare system at end of life.
The health care system has a narrow view of how to care for patients in elderhood. That view focuses on extending life with machines and procedures, not caring holistically for the patient. As such, patients will likely spend the last years of their lives in long-term care facilities and their final weeks in an ICU. Our fear of death contributes to this model for health. Dying at home, peacefully, and surrounded by family is almost impossible in our world.
Fittingly, the central idea of this book is that in old age, or when facing a terminal diagnosis, it is more important to understand your life rather than to extend it. While this may seem simple, its implications are profound.
A natural death means accepting that, at some point, we are old enough or sick enough to die without trying to interrupt that natural process beyond being kept comfortable. In our cynical and overly clinical age, it is difficult to reflect on the meaning of ones life, but that kind of honest introspection is exactly what we need. Accordingly, The Journeys End seeks to help people manage their healthcare, their expectations, and their decisions in the final phase of life.
Papildus informācija
In the tradition of Atul Gwandes Being Mortal, this compassionate work helps individuals develop a more accepting view of dying while teaching them what to expect and how to navigate the healthcare system at end of life.
Foreword |
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vii | |
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Acknowledgments |
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xi | |
Introduction |
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xiii | |
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1 Preparing for the Last Phase of Life |
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1 | (10) |
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2 Agony as the Default Option |
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11 | (14) |
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3 The Fiction of Living Forever |
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25 | (10) |
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4 The Art and Science of Medicine |
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35 | (12) |
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5 The Ethics and Economics of End-of-Life Care |
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47 | (12) |
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59 | (12) |
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7 Patient Autonomy: A Double-Edged Sword |
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71 | (12) |
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8 Who's Afraid of the Big, Bad GR? |
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83 | (10) |
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93 | (8) |
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10 Options for End-of-Life Care |
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101 | (12) |
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11 Preparing Paperwork for Elderhood |
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113 | (14) |
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12 Understanding the FFS Physician Payment System |
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127 | (16) |
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13 Changing the Primary Care Payment Model |
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143 | (14) |
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14 Making Comfort Care More Accessible |
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157 | (10) |
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15 New Funding Options for End-of-Life Care |
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167 | (8) |
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16 Reinstituting the Role of Care Coordination and Creating a Home |
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175 | (10) |
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17 Accepting Life's Limits |
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185 | (6) |
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18 The Importance of Accepting Trade-Offs |
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191 | (10) |
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19 Concluding Observations |
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201 | (8) |
Appendix: Recommendations for Improving End-of Life Care |
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209 | (6) |
Notes |
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215 | (14) |
Bibliography |
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229 | (8) |
Index |
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237 | (14) |
About the Author |
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251 | |
Michael D. Connelly served as the CEO of Mercy Health, one of the nation's largest health systems, from 1994 to 2017. Currently, he is the CEO Emeritus of Mercy Health (now Bon Secours Mercy Health System). He has global experience with health systems in Germany, the United Kingdom, Denmark, Sweden and Spain. He has also visited health facilities and orphanages around the world, including in Port a Prince, Haiti; Mathare Slums in Nairobi, Kenya; Kingston, Jamaica; Georgetown, Guyana, and Panguma, Sierra Leone. He has extensive governance experience and has chaired the following boards: Catholic Charities USA, the Urban League of SWO, the National Catholic Health Association, Catholic Medical Mission Board (CMMB) in NYC, and Premier, Inc. He also chaired the United Way for Greater Cincinnati (the 6th largest in the US) in 2013. He has published 17 articles in various healthcare journals, and currently lives on Johns Island, South Carolina.