Atjaunināt sīkdatņu piekrišanu

E-grāmata: Nursing Care of Children and Young People with Long-Term Conditions, Second Edition 2nd Edition [Wiley Online]

Edited by (Cardiff University, Cardiff, UK), Edited by (Cardiff University, Cardiff, UK)
  • Formāts: 304 pages
  • Izdošanas datums: 21-Jan-2021
  • Izdevniecība: Wiley-Blackwell
  • ISBN-10: 1119653134
  • ISBN-13: 9781119653134
Citas grāmatas par šo tēmu:
  • Wiley Online
  • Cena: 68,19 €*
  • * this price gives unlimited concurrent access for unlimited time
Nursing Care of Children and Young People with Long-Term Conditions, Second Edition 2nd EditionPalielināt
  • Formāts: 304 pages
  • Izdošanas datums: 21-Jan-2021
  • Izdevniecība: Wiley-Blackwell
  • ISBN-10: 1119653134
  • ISBN-13: 9781119653134
Citas grāmatas par šo tēmu:
Wiley Online E-booksMore info about Wiley Online
Rokasgrāmatas mājas lapa: https://onlinelibrary.wiley.com/doi/book/10.1002/9781119653134

The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings.

Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource:

  • Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice
  • Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions
  • Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners
  • Examines both classic and contemporary theories of grief, loss, coping, and adaptation Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness
  • Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services

Nursing Care of Children and Young People with Long Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.

Contributors xiii
Introduction xvii
1 The Definition and Aetiology of Long-Term Conditions 1(30)
Sian Bill
Angharad Dwynwen Barklam
Introduction
1(1)
Aim of the chapter
1(1)
Intended learning outcomes
2(1)
Genetic knowledge
2(1)
The need for genetic knowledge
3(1)
The ethical, legal and social implications in the screening, testing and recording of genetic information
4(1)
The determinants of genetic disease
5(1)
Chromosomal abnormalities
6(2)
Chromosomal nomenclature
8(1)
Single gene (Mendelian) disorders
8(1)
Autosomal recessive inheritance
9(2)
Autosomal dominant inheritance
11(1)
X-linked recessive inheritance
11(1)
X-linked dominant inheritance
12(1)
Inherited variations
12(3)
Antenatal period
15(2)
The neonatal period
17(2)
Post-neonatal period
19(3)
Adolescent period
22(1)
Conclusion
23(1)
Useful websites
24(1)
References
25(6)
2 Context of Care and Service Delivery 31(24)
Peter McNee
Introduction
31(1)
Aim of the chapter
31(1)
Intended learning outcomes
31(1)
Context of change
32(1)
Political influences
32(1)
Economic influences
33(1)
Social influences
34(1)
New models of service delivery
35(1)
Modernising workforce
36(2)
Increasing patient expectations and engagement
38(1)
Locally based commissioning
39(1)
Staffing implications
40(1)
Staff education and competence
40(2)
Meeting parental needs
42(2)
Innovative practices - new roles
44(1)
Telemedicine
45(1)
Key worker role
45(2)
Mental health issues
47(1)
Multiagency working
47(1)
Multidisciplinary team (MDT)/Interprofessional working (IPW)
48(1)
Nursing implications, challenges and opportunities in MDT/IPW working
49(1)
Conclusion
49(1)
Acknowledgement
50(1)
Useful websites
50(1)
References
50(5)
3 Impact upon the Child and Parents 55(26)
Dawn Daniel
Mandy Brimble
Introduction
55(1)
Aim of the chapter
55(1)
Intended learning outcomes
56(1)
Theories of grief, loss and change
56(4)
Initial impact
60(1)
Type 1 diabetes
60(1)
Impact on parents
61(1)
Impact on the child/young person with a long-term illness
62(3)
Continuing care
65(1)
Coping, adaptation and change
66(1)
Theories of stress and coping
67(1)
Coping strategies
68(1)
Normalisation
69(5)
Conclusion
74(1)
Acknowledgement
75(1)
Useful websites
75(1)
References
75(6)
4 Impact On Siblings 81(16)
Arnie Hodges
Daniel Kelly
Julia Tod
Introduction
81(1)
Aim of the chapter
81(1)
Intended learning outcomes
82(1)
The sibling relationship
82(1)
Sibling identity
83(1)
Sibling boundaries
83(1)
Sibling interaction
84(1)
Parental influence on the sibling relationship
85(1)
The impact of a long-term condition on the sibling
86(1)
A new diagnosis
86(1)
Changes in family life for the sibling
87(1)
Emotional labour
88(1)
Sibling empathy and maturity
88(1)
Siblings as carers
89(1)
Young carers and carers' assessment
90(1)
Recognising the unmet needs of siblings
91(2)
Conclusion
93(1)
Useful websites
93(1)
References
94(3)
5 A Holistic Approach to Meeting Physical, Social and Psychological Needs 97(24)
Arnie Hodges
Julia Tod
Introduction
97(1)
Aim of the chapter
97(1)
Intended learning outcomes
98(1)
Prevalence of eczema
98(1)
Nursing considerations
99(1)
Presentation of eczema
100(1)
Treatment of eczema with emollients
101(1)
Topical emollients
101(1)
Safety
102(1)
Effects of the itch scratch cycle
102(1)
Family stress and coping
103(2)
Assessment and immediate intervention
105(1)
Current care management plan
106(1)
Wet wraps
106(1)
Topical steroids
107(1)
Pain assessment
107(2)
Antihistamines
109(1)
Play and distraction
109(1)
Bullying
110(2)
Spirituality
112(2)
Traditional complementary and alternative medicine
114(1)
Health promotion
115(1)
Conclusion
116(1)
Useful websites
116(1)
Recommended reading
117(1)
References
117(4)
6 Empowering Children, Young People and their Families 121(24)
Mandy Brimble
Introduction
121(1)
Aim of the chapter
121(1)
Intended learning outcomes
122(1)
Health promotion
122(3)
Empowerment
125(1)
Approaches to health promotion
126(3)
Parental smoking
129(2)
Obesity
131(4)
Non-compliance
135(1)
Steroids
135(1)
Restrictive physical interventions and therapeutic holding
136(3)
Conclusion
139(1)
Useful websites
140(1)
References
140(5)
7 Ethical Issues 145(26)
Peter McNee
Introduction
145(1)
Aim of the chapter
145(1)
Intended learning outcomes
146(1)
Why study ethics?
146(1)
A definition of ethics
146(1)
Introduction to ethical theories
147(1)
Theory of consequentialism
147(1)
Utilitarianism
148(1)
Act utilitarianism
148(1)
Rule utilitarianism
148(3)
Theory of deontology
151(3)
Ethical principles
154(1)
Principle of autonomy
155(2)
Ethical principle of beneficence
157(1)
Issues
158(1)
Ethical principle of non-maleficence
159(2)
Ethical principle of justice
161(1)
A nursing ethic
162(1)
Definition of an ethical dilemma
163(1)
Ethical decision-making
164(2)
A suggested model for ethics in practice/decision-making
166(1)
Conclusion
167(1)
Acknowledgement
167(1)
Useful websites
168(1)
Recommended reading
168(1)
References
168(3)
8 Children and Young People's Continuing Care 171(22)
Melda Price
Sian Thomas
Introduction
171(1)
Aim of the chapter
172(1)
Intended learning outcomes
172(1)
Continuing care needs and integrated children services
172(5)
Transition to home care
177(2)
Blended diets
179(1)
Children and young people's continuing care
180(1)
Identifying an appropriate care package
181(1)
Key worker role/care coordinator
182(1)
Community children's nursing services
182(2)
Provision of equipment for home care
184(1)
Carers' assessments
185(1)
The need for respite or short break provision
186(2)
Home adaptations
188(1)
Education and support at school
188(1)
Support for families
189(1)
Conclusion
189(1)
Useful websites
190(1)
References
190(3)
9 Acute Emergencies 193(20)
Martina Nathan
Peter McNee
Jane Davies
Introduction
193(1)
Aim of the chapter
193(1)
Intended learning outcomes
193(1)
Acute emergencies
194(2)
Aetiology
196(1)
Environmental factors
196(1)
Pathophysiology
197(1)
Presentation
197(1)
Prognosis
198(2)
Treatment
200(1)
Administration of chemotherapy
201(1)
Central venous access devices
202(3)
Sepsis
205(1)
Children's critical care
206(1)
Family-focused care
207(1)
Multidisciplinary working across different organisations
208(1)
Conclusion
209(1)
Useful websites
210(1)
References
210(3)
10 Adolescence 213(30)
Sian Bill
Taryn Eccleston
Introduction
213(1)
Aim of the chapter
213(1)
Intended learning outcomes
214(1)
Existing knowledge
214(1)
Why nurses need knowledge of adolescence
214(1)
Brief overview of adolescent development
215(1)
Understanding long-term conditions from a young person's perspective
216(1)
Chronic kidney disease
217(3)
Communicating with young people
220(1)
Communication issues for Thomas
221(1)
Peer groups
221(3)
The impact of having a long-term condition on growth and development
224(1)
Delayed growth and puberty
224(1)
Inconsistencies between physical and psychological development
225(1)
Body image and self-esteem
225(2)
Compliance and non-compliance, concordance and co-production
227(1)
The social aspects of having a long-term condition
228(1)
Young people, long-term conditions and school
229(1)
Bullying
230(1)
The hospitalised adolescent
231(1)
Issues for young people in hospital
232(2)
Specialised adolescent units
234(1)
Service delivery and adolescent health
235(1)
Promoting excellence
236(1)
The role of the nurse
236(1)
Conclusion
237(1)
Acknowledgement
237(1)
Useful websites
238(1)
Recommended reading
238(1)
References
238(5)
11 Transitional Care 243(24)
Sian Bill
Arnie Hodges
Introduction
243(1)
Aim of the chapter
243(1)
Intended learning outcomes
243(1)
Overview of cystic fibrosis
244(2)
Further complications
246(1)
Genotype
246(1)
Management
247(1)
Adolescents with a long-term condition
247(1)
Transitional care
248(1)
The philosophy of transitional care
248(1)
Models of transition
248(2)
Issues regarding transition for adolescents
250(2)
Gaining autonomy
252(1)
Managing a long-term condition
252(1)
Support and decision-making
252(2)
The role of the nurse
254(3)
Promoting the paradigm shift
257(1)
The principles of successful transitional care
258(4)
Conclusion
262(1)
Useful websites
262(1)
Recommended reading
262(1)
References
263(4)
Index 267
MANDY BRIMBLE, Senior Lecturer, Children and Young People's Nursing, School of Healthcare Sciences, Cardiff University, Cardiff, UK. She has worked as a Children's Nurse in general medicine and day surgery, and as the research and education lead in a children's hospice.

PETER MCNEE, Senior Lecturer, Children and Young People's Nursing, School of Healthcare Sciences, Cardiff University, Cardiff, UK. His main areas of teaching include the acquisition of clinical skills, paediatric critical care, and acute clinical care.
Permanent link: https://www.kriso.lv/db/9781119653134_pe.html
Keywords: