"Kidney Palliative (Supportive) Care is a field that has been in existence since at least 2000 but has yet to gain solid traction in terms of integration into nephrology practice or consistent visibility in publications and professional meetings. This isbeginning to change. A search of PubMed for "Kidney AND Palliative Care" reveals over 1,300 articles with the majority having been written in the last 10 years with a particular upsurge in the last five years"--
Palliative care has become increasingly important across the spectrum of healthcare, and with it, the need for education and training of a broad range of medical practitioners not previously associated with this field of care. As part of the Integrating Palliative Care series, this volume on palliative care in nephrology guides readers through the core palliative knowledge and skills needed to deliver high value, high quality care for seriously ill patients with chronic and end-stage kidney disease. Chapters are written by a team of international leaders in kidney palliative care and are organized into sections exploring unmet supportive care needs, palliative care capacity, patient-centered care, enhanced support at the end of life, and more. Chapter topics are based on the Coalition for Supportive Care of Kidney Patients Pathways Project change package of 14 evidence-based best practices to improve the delivery of palliative care to patients with kidney disease. An overview of the future of palliative care nephrology with attention to needed policy changes rounds out the text. Palliative Care in Nephrology is an ideal resource for nephrologists, nurses, nurse practitioners, physician assistants, social workers, primary care clinicians, and other practitioners who wish to learn more about integrating individualized, patient-centered palliative care into treatment of their patients with kidney disease.
Recenzijas
This book should be compulsory reading for any nephrologist or trainee nephrologist and would be a useful reference for palliative care physicians and their trainees. And it will be a useful resource for any and all members of the multidisciplinary nephrology team. * Roger Woodruff, IAHPC Newsletter *
Contributors |
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1 | (12) |
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SECTION I Why We Need This Book---Unmet Supportive Care Needs of Patients With Kidney Disease |
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2 Birth Of A Benefit---Brief History Of The Esrd Program |
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13 | (8) |
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3 Unmet Palliative Care Needs Of Patients With Kidney Disease And Consequences |
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21 | (15) |
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4 Models For Operationalizing Supportive Care In Kidney Care |
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36 | (13) |
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SECTION II Supportive Care Capacity---Creating the Infrastructure to Provide Kidney Supportive Care |
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5 Assessing Patients' Unmet Palliative Care Needs With Tools For Assessment |
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49 | (9) |
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6 Primary Palliative Care Education For The Multidisciplinary Nephrology Team |
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58 | (9) |
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7 Establishing Relationships With Specialty Palliative Care For More Complex Patient Needs |
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67 | (9) |
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8 Physician Wellness In Nephrology And Palliative Care |
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76 | (11) |
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SECTION III Patient-Centered Care---Values Guide Care |
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9 The Shared Decision-Making Process As The Recommended Standard For Treatment Decisions In Kidney Disease And Requisite Communication Skills To Implement The Process |
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87 | (11) |
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10 Advance Care Planning To Elicit And Respect Patient Values And Preferences |
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98 | (10) |
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11 Involving Family And Friends In Palliative Care For Persons With Kidney Disease |
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108 | (8) |
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12 The System To Implement Advance Care Planning And Make Proxies, Advance Directives, And Portable Medical Orders Available And Actionable Across Care Settings |
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116 | (11) |
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SECTION IV Just Right Care---The Right Care to the Right Person at the Right Time |
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13 The Role Of Estimating And Communicating Prognosis In Kidney Supportive Care |
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127 | (9) |
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14 Active Medical Management Without Dialysis For Patients With Advanced Chronic Kidney Disease |
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136 | (12) |
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15 Systematic Pain Assessment And Management |
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148 | (19) |
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16 Systematic Nonpain Symptom Assessment And Management |
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167 | (11) |
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17 Systematic Psychosocial And Spiritual Needs Assessment And Management |
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178 | (10) |
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18 Geriatric Nephrology Syndromes And Assessment And Management Of Cognitive Impairment |
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188 | (9) |
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19 Palliative Considerations For The Patient With Acute Kidney Injury In The Intensive Care Unit |
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197 | (14) |
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SECTION V Throughout the Continuum---Enhanced Support at the End of Life |
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20 Coordination Of Care And Care Transitions With Primary Care Clinicians, Specialty Palliative Care, And Hospice |
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211 | (9) |
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220 | (7) |
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22 Process Of Dialysis Withdrawal For Patients Failing To Thrive On Dialysis |
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227 | (12) |
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SECTION VI The Future of Palliative Care Nephrology |
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23 Ethical Issues In The Supportive Care Of Patients With Advanced Kidney Disease |
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239 | (9) |
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24 Transforming Practice To Support Person-Centered Care For Patients With Advanced Kidney Disease |
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248 | (13) |
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Index |
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261 | |
Alvin H. Moss, MD, FACP, FAAHPM, is Professor of Medicine and Director of the Center for Health Ethics and Law at West Virginia University in Morgantown, WV.
Dale E. Lupu, MPH, PhD, is Senior Strategic Advisor of the Coalition for Supportive Care of Kidney Patients and Lead Consultant and founder of Daleview Associates in Maryland.
Nancy C. Armistead, MPA, is Executive Director of the Mid-Atlantic Renal Coalition in Richmond, VA.
Louis Diamond, MBChB, FCP, (SA), FACP, FHIMSS, is Member of the Executive Committee for the Coalition for Supportive Care for Kidney Disease Patients.