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Patient-Centred IVF: Bioethics and Care in a Dutch Clinic [Hardback]

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Contemporary Dutch policy and legislation on new reproductive technologies have shaped daily clinical practices. In recent years, policy has focused on providing accessible and high quality treatment to its citizens with fertility problems. This book places the patient-centred practices of a single clinic in a national context where ARTs are highly regulated ('Dutch IVF') and examines how this form of medicine co-shapes the experiences, views and decisions of the women and men using these technologies. To understand the use of medical technology in practice and the complexity of processes of medicalization, we need to go beyond 'easy assumptions' about the hegemony of biomedicine. Rather, this study argues that closer attention the multiple dynamics is required to fully understand these processes.

Recenzijas

The ethnographic perspective of the book offers a valuable insight into the limitations that patient-centred approaches offer to solving the issues of medicalization in the context of ART. What is more, the book provides a close look into the daily work of health care providers, which is extremely valuable as it offers a careful analysis of health care providers interactions with patients, including mundane details often left outside of the analytical gaze. Medicine Anthropology Theory





The social scientific study of reproduction is a growing field and scholars in that field will welcome a book on ART in the Dutch context as do a wide range of scholars and general readers interested in either feminism, gender, or health care. Physicians and other medical professionals will be interested in this work due to its clear implications for practice. Arthur L. Greil, Alfred University

Acknowledgements

Abbreviations



Introduction





Medicalization and Persistence

Patient-Centred Medicine

Outline of the Book



Chapter
1. Studying ARTs: Theory, Context, the Clinic and Methods    





Understanding the Use of ARTs

Dutch Context Families, Children and Childlessness

The Radboud Clinic

The Study



Chapter
2. Dutch IVF. Legislation, Guidelines and Health Insurances





Legislation and Guidelines

Health Insurance Coverage

Conclusion



Chapter
3. The Couples and their Quest for a Child





Social and Demographic Characteristics

Facing Fertility Problems: Diverse Points of Departure

Couples Quest for a Child: the Process

Complementary and Alternative Medicine

Adoption as a Last Resort

Conclusion



Chapter
4. Daily Practices in the Patient-Centred Clinic





Interpersonal Aspects of Care

Privacy (or Not)

Abundant Information

Psycho-Social Support and Empathy

Decision Making Multiple  Dynamics

Conclusion



Chapter
5. Information and Interpretation. Risks and Rates





IVF Success Rates: What Do They Tell Us?

Risks: Facts and Perceptions

Beyond Facts Uncertainty and Trust

Conclusion



Chapter
6. The Body and Visualizing Technologies





Gaining Insight in the Reproductive Body and its Flaws

Visualization of Reproduction through IVF

Case: Louises Diary

Trying Once More? Compelling Technology

Conclusion



Chapter
7. Gendered Suffering and Support





The Gendered and Unequal Burdens of IVF

Sharing the Grief of Loss after IVF

Essentializing Genetics and Gender Dynamics

Conclusion



Chapter
8. Bioethics in Practice





Multi-Disciplinary Ethics Meeting

Case: Woman Carrier of a Cancer Gene

Concerns in Context

Addressing Ethically Sensitive Requests

Conclusion



Chapter
9. Conclusion





Dutch IVF

Bioethics in Practice

Patient-Centred Practices

Gender Inequality and the Imperative of Genetics

Final Thoughts: Implications for the Field and Future Research



Appendices



Appendix I: Methods

Appendix II: Social and Demographic Background Data Of Study  Participants

Appendix III: Patients or Couples Characteristics or Situations Leading to
Concerns among Clinic Staff and their Reasons for Withholding Treatment



Glossary

Reference list

Index
Trudie Gerrits is Assistant Professor in the Anthropology Department at the University of Amsterdam (UvA), Netherlands, where she is co-director of the Masters in Medical Anthropology and Sociology (MAS).