|
|
|
|
3 | (6) |
|
|
|
|
|
2 Introduction: The History of Statistics in Medicine and Surgery |
|
|
9 | (18) |
|
|
3 Introduction: Using Data to Drive Change and Improvement: The Legacy of Florence Nightingale |
|
|
27 | (4) |
|
|
|
4 Introduction: Quality Improvement and Databases in the Context of Professionalism |
|
|
31 | (4) |
|
|
Part II Nomenclature and Taxonomies |
|
|
|
5 Nomenclature for Congenital and Pediatric Cardiac Disease: Historical Perspectives and the International Pediatric and Congenital Cardiac Code |
|
|
35 | (16) |
|
|
|
|
|
6 Defining Terms in Lists of Nomenclature |
|
|
51 | (12) |
|
|
|
7 Illustrating Terms in Lists of Nomenclature |
|
|
63 | (14) |
|
|
|
|
|
|
|
8 Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Cardiac Surgery |
|
|
77 | (50) |
|
|
9 Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Cardiology |
|
|
127 | (14) |
|
|
|
|
10 Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Anesthesia |
|
|
141 | (14) |
|
|
11 Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Critical Care |
|
|
155 | (8) |
|
|
|
|
|
12 Early Database Initiatives: The Fyler Codes |
|
|
163 | (8) |
|
|
13 The Academic Database: Lessons Learned from the Congenital Heart Surgeons' Society Data Center |
|
|
171 | (14) |
|
|
|
|
14 Clinical Versus Administrative Data |
|
|
185 | (8) |
|
|
|
15 Databases for Pediatric Cardiac Transplantation: The United Network for Organ Sharing/Scientific Registry of Transplant Recipients (UNOS/SRTR) and the Pediatric Heart Transplant Study (PHTS) |
|
|
193 | (18) |
|
|
16 Databases for Extracorporeal Membrane Oxygenation and Ventricular Assist Devices |
|
|
211 | (8) |
|
|
|
|
|
|
17 The United Kingdom National Congenital Heart Disease Audit |
|
|
219 | (12) |
|
|
|
|
18 The Pediatric Cardiac Care Consortium: The End of an Era and Beginning of a New Mission |
|
|
231 | (12) |
|
|
|
19 Pediatric Cardiac Catheterization Databases |
|
|
243 | (16) |
|
|
|
|
|
|
|
20 Pediatric Electrophysiology Databases |
|
|
259 | (8) |
|
|
|
21 Using Data to Drive Improvement and Build the Science of Nursing |
|
|
267 | (20) |
|
|
|
|
|
22 Data Standards of the American College of Cardiology Foundation (ACCF) and the American Heart Association (AHA) and the Universal Pediatric Cardiac Dataset |
|
|
287 | (8) |
|
|
23 Ethical Issues Confronting Outcomes Analysis and Quality Assurance |
|
|
295 | (12) |
|
|
|
|
|
Part IV Stratification of Complexity |
|
|
|
24 Statistical Issues in the Analysis and Interpretation of Outcomes for Congenital Cardiac Surgery |
|
|
307 | (12) |
|
|
25 Real Time Monitoring of Risk-Adjusted Surgical Outcomes for Congenital Heart Disease |
|
|
319 | (8) |
|
|
|
|
|
26 Risk Adjustment for Congenital Heart Surgery -1 (RACHS-1) for Evaluation of Mortality in Children Undergoing Cardiac Surgery |
|
|
327 | (10) |
|
|
|
27 The Aristotle Complexity Score: A Tool to Evaluate Performance in Congenital Heart Surgery |
|
|
337 | (26) |
|
|
28 Empirically Based Tools for Analyzing Mortality and Morbidity Associated with Congenital Heart Surgery |
|
|
363 | (16) |
|
|
|
|
|
Part V Verification of Data Completeness and Accuracy of Data |
|
|
|
29 Verification of Data Completeness and Accuracy |
|
|
379 | (16) |
|
|
|
Part VI Subspecialty Collaboration |
|
|
|
|
395 | (8) |
|
|
|
|
Part VII Longitudinal Follow-Up |
|
|
|
31 Use of National Death Registries to Empower Databases in Reporting Longitudinal Follow-Up |
|
|
403 | (10) |
|
|
|
|
32 Quality of Life: The Need for a National Database |
|
|
413 | (22) |
|
|
|
33 Longitudinal Follow-Up Studies in the Pediatric Heart Network |
|
|
435 | (10) |
|
|
|
|
34 The Value of National Institutes of Health (NIH) Registry-Based Research in Identifying Childhood Cardiac Disease Outcomes: The Pediatric Cardiomyopathy Registry Experience |
|
|
445 | (22) |
|
|
|
|
|
|
Part VIII Public Reporting of Data |
|
|
|
35 Public Reporting of Cardiac Data: Pros, Cons, and Lessons for the Future |
|
|
467 | (12) |
|
|
36 Public Reporting of Pediatric Cardiac Data |
|
|
479 | (12) |
|
|
|
|
|
37 Communication Chaos: How Incomplete and Conflicting Information Prevents Improved Outcomes for Patients with Pediatric and Congenital Cardiac Disease (and What We Can Do About It) |
|
|
491 | (16) |
|
|
Index |
|
507 | |