"The question of how to balance individual privacy interests and community interests in the exploitation of healthcare data is one of the most vexing issues facing privacy scholars. In this important contribution Munns and Basu, by putting patient choice and technology at the centre of the debate, make a key contribution that must be read by all interested parties." - Andrew Murray, London School of Economics, UK
"I found this study of health informatics to be an invaluable addition to the literature on technology regulation and the disruptive capacity of technological innovation, demonstrating our need to re-evaluate core concepts of privacy and data ownership under the forces of information technology." - Robert Lee, University of Birmingham, UK
"Writing in the shadow of 'care.data' the authors suggest that, by an imaginative use of online portals and platforms, the collective interest in sharing healthcare data can be reconciled with the individual interest in controlling access to one's personal health records. The proposal in this timely book merits serious consideration." - Roger Brownsword, King's College London, UK
"This book provides a very important contribution to the debate about consent and the use of health information that we should be having increasingly with the public. Transparency is not only ethically correct but also incredibly empowering, breaking down barriers to information sharing which so often jeopardise safe care. This novel proposal unites traditional privacy theory with innovation, offering mechanisms to make such empowerment a reality." - Dame Fiona Caldicott, FRCPsych, FRCP; National Data Guardian; Chair, Independent Information Governance Oversight Panel (IIGOP)
