Summary |
|
1 | (12) |
|
|
13 | (26) |
|
|
16 | (1) |
|
|
17 | (1) |
|
Purpose of a Decadal Survey |
|
|
18 | (1) |
|
Applying the Social and Behavioral Sciences to the Study of Dementia |
|
|
19 | (2) |
|
Context for Research on the Impacts of Dementia |
|
|
21 | (1) |
|
A Large and Growing Problem |
|
|
22 | (1) |
|
Disparities in Rates of Dementia and in Care and Resources |
|
|
22 | (2) |
|
|
24 | (1) |
|
|
25 | (1) |
|
|
26 | (1) |
|
|
27 | (2) |
|
|
29 | (2) |
|
|
31 | (1) |
|
|
31 | (8) |
|
2 Prevention and Protective Factors |
|
|
39 | (5) |
|
Interpreting the Evidence |
|
|
41 | (1) |
|
Influences on Cognitive Health in Individuals |
|
|
42 | (1) |
|
Evidence About Risk and Protection for Cognitive Health |
|
|
43 | (1) |
|
2017 National Academies Report |
|
|
44 | (29) |
|
|
46 | (1) |
|
Potentially Important Risk Factors That Have Received Less Attention |
|
|
47 | (1) |
|
Use of Emerging Evidence to Promote Public Health |
|
|
48 | (2) |
|
|
50 | (3) |
|
|
53 | (1) |
|
|
54 | (1) |
|
|
55 | (1) |
|
|
56 | (1) |
|
Racial/Ethnic Disparities in Dementia Risk |
|
|
56 | (4) |
|
|
60 | (5) |
|
|
65 | (8) |
|
3 Improving Outcomes for Individuals Living with Dementia |
|
|
73 | (36) |
|
Perspectives on Living with Dementia |
|
|
74 | (1) |
|
Problems in Obtaining an Accurate and Timely Dementia Diagnosis |
|
|
74 | (1) |
|
Problems in Obtaining Supports and Services |
|
|
75 | (1) |
|
Challenges in Communicating with Doctors and Other Health Care Professionals |
|
|
76 | (1) |
|
|
77 | (1) |
|
Research on Key Aspects of Living with Dementia |
|
|
77 | (1) |
|
|
78 | (1) |
|
Challenges in Arriving at a Diagnosis |
|
|
79 | (4) |
|
Questions About Communicating a Dementia Diagnosis |
|
|
83 | (1) |
|
Promoting Autonomy and Protecting from Harm |
|
|
83 | (2) |
|
Financial Decisions and Potential for Abuse |
|
|
85 | (3) |
|
Sexual Behavior, Risk, and Dementia |
|
|
88 | (1) |
|
Resources for Assessing and Supporting Decisions |
|
|
89 | (2) |
|
Interventions to Alleviate the Impact of Dementia |
|
|
91 | (1) |
|
Goals for the Care of Persons Living with Dementia |
|
|
92 | (3) |
|
Approaches for Addressing Key Dementia Symptoms |
|
|
95 | (3) |
|
|
98 | (3) |
|
|
101 | (8) |
|
4 Caregivers: Diversity in Demographics, Capacities, and Needs |
|
|
109 | (28) |
|
Reliance on Family Caregivers |
|
|
110 | (4) |
|
Family Caregivers' Perspectives |
|
|
114 | (2) |
|
Research on Family Caregiving |
|
|
116 | (1) |
|
The Caregiving Experience |
|
|
116 | (3) |
|
Caregiver Capacity and Screening |
|
|
119 | (2) |
|
Supports for Family Caregivers |
|
|
121 | (1) |
|
|
122 | (2) |
|
Focus on Three Key Issues: Care Transitions, Use of Assistive Technology, and Approaches for Addressing Behavioral and Psychological Symptoms |
|
|
124 | (1) |
|
|
124 | (2) |
|
Use of Technology to Support Caregiving |
|
|
126 | (2) |
|
Approaches for Addressing Behavioral and Psychological Symptoms of Dementia |
|
|
128 | (1) |
|
|
129 | (3) |
|
|
132 | (5) |
|
5 The Role of the Community |
|
|
137 | (34) |
|
Disparities That Affect the Impact of Dementia |
|
|
138 | (3) |
|
Links Between Community Characteristics and Cognitive Health |
|
|
141 | (3) |
|
The Role of Race and Ethnicity |
|
|
144 | (1) |
|
Looking Through a Community Lens |
|
|
145 | (2) |
|
Opportunities to Support Communities |
|
|
147 | (1) |
|
|
148 | (2) |
|
A Patchwork of Resources and Supports |
|
|
150 | (3) |
|
Building Community Responsiveness and Resilience |
|
|
153 | (1) |
|
Housing for People Living with Dementia |
|
|
154 | (1) |
|
Dementia Friendly Communities |
|
|
155 | (2) |
|
Caregiver Support: Washington State |
|
|
157 | (1) |
|
Aging in Place Challenge Program: Canada |
|
|
157 | (1) |
|
The Village Movement: Beacon Hill, Boston, Massachusetts |
|
|
158 | (1) |
|
|
158 | (3) |
|
|
161 | (10) |
|
6 Health Care, Long-Term Care, and End-of-Life Care |
|
|
171 | (38) |
|
|
172 | (1) |
|
|
172 | (2) |
|
Fragmentation of Care Delivery |
|
|
174 | (1) |
|
Comprehensive Dementia Care |
|
|
174 | (1) |
|
A Model of Comprehensive Care at the Population Level |
|
|
175 | (3) |
|
|
178 | (1) |
|
Long-Term and End-of-Life Care |
|
|
179 | (1) |
|
Assisted Living and Memory Units |
|
|
180 | (1) |
|
|
180 | (2) |
|
Alternatives to Nursing Homes |
|
|
182 | (2) |
|
Palliative and Hospice Care |
|
|
184 | (1) |
|
Paying for Care: Medicare and Medicaid |
|
|
185 | (1) |
|
|
186 | (2) |
|
The Federal Role in Innovation |
|
|
188 | (1) |
|
|
189 | (1) |
|
|
190 | (1) |
|
Medicare Advantage and Dementia Care |
|
|
190 | (4) |
|
|
194 | (6) |
|
|
200 | (9) |
|
7 Economic Costs of Dementia |
|
|
209 | (14) |
|
Magnitude of Economic Costs |
|
|
210 | (2) |
|
|
212 | (2) |
|
The Economics of Innovation |
|
|
214 | (1) |
|
Applying Behavioral Economics |
|
|
215 | (1) |
|
A Word About the Costs of Aducanumab |
|
|
216 | (2) |
|
|
218 | (1) |
|
|
219 | (4) |
|
8 Strengthening Data Collection and Research Methodology |
|
|
223 | (40) |
|
Challenges of Quantitative Research on Dementia |
|
|
224 | (1) |
|
Four Opportunities for Improvements in Methodology |
|
|
225 | (1) |
|
|
226 | (1) |
|
Developing New Data Sources and Adding Items to Existing Sources |
|
|
227 | (2) |
|
Linking Existing Data Sources in New Ways |
|
|
229 | (3) |
|
|
232 | (1) |
|
|
233 | (1) |
|
|
234 | (1) |
|
Identifying Valid Early Predictors of Cognitive Outcomes |
|
|
235 | (2) |
|
|
237 | (1) |
|
Broadening the Repertoire of Tools |
|
|
237 | (2) |
|
Creating Opportunities for Quasi-Experimental Discovery, Including Leveraging Instrumental Variables Analyses |
|
|
239 | (1) |
|
Enhancing Analyses of Randomized Controlled Trials |
|
|
239 | (1) |
|
Moving from Evidence to Implementation |
|
|
240 | (2) |
|
Conducting Pragmatic Clinical Trials Embedded in Health Systems |
|
|
242 | (2) |
|
Evaluating Complex, Dynamic Interventions |
|
|
244 | (1) |
|
Simulations, Microsimulations, Agent-Based Models, and Complex Systems Models |
|
|
245 | (1) |
|
Formalizing Study Design Approaches |
|
|
245 | (2) |
|
|
247 | (1) |
|
Methods for Assessing Heterogeneity and Generalizing Results |
|
|
248 | (1) |
|
Tools for Systematically Combining Evidence |
|
|
248 | (1) |
|
Tools for Quantifying Impacts of Policies, Interventions, or Therapies |
|
|
249 | (3) |
|
Investment in Human Capital and Research Capacity |
|
|
252 | (1) |
|
|
253 | (3) |
|
|
256 | (7) |
|
9 Ten-Year Research Priorities |
|
|
263 | (12) |
|
|
267 | (3) |
|
|
270 | (5) |
|
|
|
A Biographical Sketches of Committee and Advisory Panel Members |
|
|
275 | (10) |
|
B The Paid Health Care Workforce |
|
|
285 | (8) |
|
C Synthesis of Reviews of Nonpharmacologic Interventions |
|
|
293 | (28) |
|
D Complete Research Agenda |
|
|
321 | |