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E-grāmata: Refugee Displacement, Disability and Human Rights: The Production, Processing and Power of Data

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"This book presents a timely and innovative exploration of one of the first human rights articles about data production and processing: the Convention on the Rights of Persons with Disabilities article 31, 'Statistics and data collection'. The study provides detailed explorations of the legal and practical demands of article 31, how these have been interpreted, and the practice of human rights research with marginalised communities. It describes the history of the article's drafting in detail, uncoveringthe tensions at its heart today. This analysis provides the foundations for an alternative doctrinal reading of the obligations in article 31 and an exploration of a potential group right. The book's detailed analysis is assisted by a new conceptual framework that illustrates the relationship between visibility and power. The work demonstrates that data is not inert but powerful and may be used in ways that are helpful and harmful to rights holders. Through closely examining disability human rights data practices in refugee contexts, it concludes that human rights protections are being ignored in the urgency to create more data to identify and address inequality. The author identifies immediate actions that may be taken to remediate current practices. The book will be an invaluable resource for academics, researchers and policy-makers working in disability studies, human rights law, refugee and migration studies, technology and society"--

This book presents a timely and innovative exploration of one of the first human rights articles about data production and processing: the Convention on the Rights of Persons with Disabilities article 31, ‘Statistics and data collection’.



This book presents a timely and innovative exploration of one of the first human rights articles about data production and processing: the Convention on the Rights of Persons with Disabilities article 31, ‘Statistics and data collection’.

The study provides detailed explorations of the legal and practical demands of article 31, how these have been interpreted, and the practice of human rights research with marginalised communities. It describes the history of the article’s drafting in detail, uncovering the tensions at its heart today. This analysis provides the foundations for an alternative doctrinal reading of the obligations in article 31 and an exploration of a potential group right. The book's detailed analysis is assisted by a new conceptual framework that illustrates the relationship between visibility and power. The work demonstrates that data is not inert but powerful and may be used in ways that are helpful and harmful to rights holders. Through closely examining disability human rights data practices in refugee contexts, it concludes that human rights protections are being ignored in the urgency to create more data to identify and address inequality. The author identifies immediate actions that may be taken to remediate current practices.

The book will be an invaluable resource for academics, researchers and policy-makers working in disability studies, human rights law, refugee and migration studies, technology and society.

Recenzijas

A remarkable analysis of data collection not neutral and inert but powerful and potentially dangerous combined with a profound quest to fight the discrimination against refugees with disabilities, ultimately providing an innovative conceptual framework in international law, based on the relationship between visibility, control and power.

Franēois Crépeau, Full Professor, Faculty of Law, McGill University

This book brilliantly propounds an alternative reading of Article 31 CRPD, with a focus on refugee context. It is a timely and thought-provoking contribution, which calls for a more intersectional approach to data collection and suggests a greater focus on attitudinal and environmental barriers.

Delia Ferri, Professor of Law at the School of Law and Criminology and Co-director of the Assisting Living and Learning (ALL) Institute, Maynooth University

1. Introduction Part I: Knowledge Production and Control
2. Participatory Treaty Interpretation
3. Data and Power Part II: CRPD Article 31
4. Drafting CRPD Article 31
5. Interpreting CRPD Article 31 Part III: CRPD Article 31 in Refugee Contexts
6. People with Disability in Refugee Contexts as Rights-Holders and Data Subjects
7. A Balancing Act: Mitigating the Harms of Human Rights Data Production and Processing
8. Conclusion

Philippa Duell-Piening is a socio-legal researcher specialising in the human rights of people who are refugees with disability.