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Self-Advocacy in the Lives of People with Learning Difficulties [Hardback]

  • Formāts: Hardback, 288 pages
  • Izdošanas datums: 16-Dec-2000
  • Izdevniecība: Open University Press
  • ISBN-10: 0335205275
  • ISBN-13: 9780335205271
  • Formāts: Hardback, 288 pages
  • Izdošanas datums: 16-Dec-2000
  • Izdevniecība: Open University Press
  • ISBN-10: 0335205275
  • ISBN-13: 9780335205271
* How do people with the label of learning difficulties challenge disabling environments? * What role can professionals play in supporting such challenges? * How do self-advocacy groups contribute to disability politics and the development of theories of disability?

This timely book sets out to answer these questions for students, teachers and practitioners working in the field. It examines self-advocacy in the lives of people with learning difficulties. The term 'learning difficulties' is used to describe people who have been labelled at some point in their lives as requiring specialist 'mental handicap services'. Learning difficulties is preferred over other synonyms such as mental handicap, mental impairment or learning disabilities, because it is the term preferred by many in the self-advocacy movement (the focus of this book).

Hitherto, a number of books have introduced and examined the notion of self-advocacy. This volume goes beyond these studies to offer an appraisal of self-advocacy in the lives of people with learning difficulties that is grounded in their own experiences. It redresses the dominant focus on learning difficulties as pathology or tragedy, highlighting the ways in which people so-labelled are fighting for their own human rights in a disabling society through their involvement in self-advocacy groups. It outlines a number of lessons for supporters, policy makers, professionals and service providers in relation to the resilience of self-advocates with learning difficulties and gives examples of good practice.
Series editors preface x Preface xii Acknowledgements xv Part I: Setting the agenda 1(76) Introduction 3(3) Self-advocacy and people with learning difficulties 6(20) Defining self-advocacy 6(2) The history of the self-advocacy movement 8(7) Understanding the self-advocacy group 15(9) Questions about self-advocacy: where does this leave us? 24(1) The need for a contemporary appraisal 25(1) Self-advocacy, impairment and the social model of disability 26(20) `The tragic person with disabilities: an individual model of disability 26(5) `The disabled self-advocate: the social model of disability 31(4) Impairment difficulties: towards an `inclusive social model of disability 35(9) An `inclusive social model of disability and an appraisal of self-advocacy 44(2) Researching self-advocacy 46(31) Storytelling the impact of self-advocacy 47(3) The informants: `top self-advocates 50(2) Reflections on the doing of life story research 52(9) Analysis of life stories 61(1) Self-advocacy groups in action 62(4) The four groups 66(4) Analysis of ethnography 70(4) Conclusion 74(3) Part II: Living self-advocacy 77(56) Five life stories of `top self-advocates 79(33) `Ask self-advocates 79(4) Jack Downer `Go for it 83(5) Lloyd Page `Raise your voice and not be frightened 88(8) Joyce Kershaw `Its not Downs syndrome, its up syndrome 96(8) Anya Souza `It is true. I know it is 104(8) Patrick Burke Learning from life stories 112(21) Pre self-advocacy group days: the making of a self-advocate 112(7) Being in self-advocacy groups: coming out as a self-advocate 119(7) Learning from experience: expert advice on self-advocacy 126(4) Reflections: life stories, the self-advocacy group and resilience 130(2) Conclusion 132(1) Part III: Self-advocacy in action 133(64) Inside self-advocacy groups: typologies and dynamics 135(39) Introducing the appraisal 136(1) Models of self-advocacy 136(2) The Centre Group: service-based self-advocacy 138(8) The Social Group: the merging of independence and professionalism 146(9) The Advocacy-supported Group: divisional links 155(7) The Independent Group: professional self-advocacy 162(9) Conclusions: dynamics over typologies 171(3) Across self-advocacy groups: support and models of disability 174(23) The advisor role: interventions and discourses of disability 174(4) Inclusive and exclusive support: individual and social models of intervention 178(1) `Advisor-centred versus `self-advocate-centred interventions 178(3) `Deficit versus `capacity interventions 181(3) `Talking over versus `talking with 184(2) `Expertise versus `experience 186(2) `Missing the point(s) versus `addressing the point(s) 188(2) Not just advising: self-advocates supporting one another 190(5) Conclusion: conceptualizing support in practice 195(2) Part IV: Self-advocacy revisited 197(23) Conclusions: the politics of resilience 199(21) Making analytical connections 200(7) Issues for the future 207(4) Points for practice 211(2) Critical reflections on this study: theory, activism and commodities in disability research 213(6) Conclusion 219(1) Appendix 1: Introductory booklet for narrators 220(4) Appendix 2: Collaborative life story of Joyce Kershaw 224(8) Appendix 3: Introductory booklet for groups 232(4) References 236(22) Index 258