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List of figures and tables |
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vii | |
| Foreword |
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viii | |
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| Introduction |
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1 | (11) |
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Part I Service users and social policy: an introduction |
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12 | (72) |
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1 Challenging injustice: the importance of collective ownership of social policy |
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14 | (8) |
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2 Participation and solidarity in a changing welfare state |
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22 | (11) |
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3 Social policy in developing countries: a post-colonial critique and participatory inquiry |
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33 | (10) |
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4 Advancing sustainability: developing participatory social policy in the context of environmental disasters |
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43 | (8) |
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5 Social policy and disability |
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51 | (11) |
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6 A case study of children's participation in health policy and practice |
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62 | (12) |
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7 Who owns co-production? |
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74 | (10) |
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Part II Critiquing and reconceiving Beveridge's `five giant evils': key areas of British post-war social policy from a lived experience perspective |
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84 | (34) |
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8 Rethinking disabled people's rights to work and contribute |
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86 | (9) |
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9 Talking policy as a patient |
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95 | (3) |
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10 `We don't deal with people, we deal with bricks and mortar': a lived experience perspective on UK health and housing policy |
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98 | (5) |
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11 Education (ignorance) addressing inclusive education: the issues and its importance from a participatory perspective |
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103 | (4) |
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12 "For work, we came here to find work": migrant Roma employment and the labour of language |
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107 | (11) |
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Part III The contribution of service user knowledges |
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118 | (43) |
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13 Disability policy and lived experience: reflections from regional Australia |
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120 | (12) |
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14 Renewing epistemologies: service user knowledge |
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132 | (10) |
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15 Pornography, feminist epistemology and changing public policy |
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142 | (5) |
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16 Making social policy internationally: a participatory research perspective |
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147 | (14) |
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Part IV An inclusive life course and developmental approach to social policy |
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161 | (70) |
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17 Disabled children's lives: an inclusive life course and developmental approach to social policy |
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163 | (9) |
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18 Troubled youth and troubling social policy: mental health from a Mad Studies perspective |
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172 | (9) |
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19 Disability: an inclusive life course and developmental approach to social policy |
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181 | (7) |
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20 Independent living from a Black Disabled Woman's perspective |
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188 | (7) |
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21 Food poverty and the policy context in Ireland |
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195 | (10) |
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22 Implementing race equality policies in British health and social care: a perspective from experience |
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205 | (6) |
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23 Participatory approaches to social policy in relation to ageing |
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211 | (12) |
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24 Death, dying and digital stories |
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223 | (8) |
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Part V Transforming social policy |
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231 | (58) |
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25 People acting collectively can be powerful |
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233 | (10) |
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26 Their participation and ours: competing visions of empowerment |
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243 | (8) |
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27 A participatory approach to professional practice |
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251 | (6) |
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257 | (5) |
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29 Sustainable-participatory social policy |
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262 | (15) |
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30 Participatory social policy in a large EU research project |
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277 | (12) |
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Part VI Campaigning and change |
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289 | (47) |
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Section One Approaches to activism |
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31 `What is strong, not what is wrong' |
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292 | (5) |
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32 Participatory social policy and social change: exploring the role of social entrepreneurship linked to forms of social and micro enterprises in the field of social care |
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297 | (9) |
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33 Public duty, whistleblowing and scandal: influences on public policy |
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306 | (5) |
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34 `Informed gender practice in acute mental health': when policy makes sense |
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311 | (3) |
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35 Making the case for single sex wards |
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314 | (5) |
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36 #JusticeforLB: in search of truth, accountability and justice |
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319 | (4) |
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Section Two The role of online platforms and social media |
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37 Guerilla policy: new platforms for making policy from below |
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323 | (4) |
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38 A Magna Carta for learning disabled people |
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327 | (5) |
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39 Pat's Petition: The emerging role of social media and the internet |
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332 | (4) |
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Part VII Breaking down barriers |
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336 | (31) |
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Section One Inclusion and difference in the formulation and operation of social policy |
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40 "LGBT History Month is a thing!" The story of an equal rights campaign |
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338 | (5) |
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41 Progressing gender recognition and trans rights in the UK |
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343 | (6) |
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Section Two User-led approaches to social policy |
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42 Transforming professional training and education -- a gap mending approach: the PowerUs European partnership |
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349 | (6) |
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43 Grassroots tackling policy: the making of the `Spartacus Report' |
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355 | (7) |
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44 Involvement for influence: developing the 4Pi Involvement Standards |
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362 | (5) |
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Part VIII Participatory research and evaluation |
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367 | (60) |
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45 From expert to service user: challenging how lived experience is demeaned |
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369 | (7) |
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46 Participatory methodologies involving marginalised perspectives |
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376 | (13) |
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47 Developing the evidence to challenge `welfare reform': the road to `Cash Not Care' |
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389 | (5) |
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48 Service user-controlled research for evidence-based policymaking |
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394 | (12) |
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49 Participatory citizenship, gender and human trafficking in Nepal |
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406 | (12) |
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50 Experiential knowledge in mental health policy and legislation: can we ever change the agenda? |
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418 | (9) |
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| Conclusion |
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427 | (8) |
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| Notes on contributors |
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435 | (12) |
| Index |
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447 | |
