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E-grāmata: Saviour Siblings: A Relational Approach to the Welfare of the Child in Selective Reproduction

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Genetic screening technologies involving pre-implantation genetic diagnosis (PGD) raise particular issues about selective reproduction and the welfare of the child to be born. How does selection impact on the identity of the child who is born? Are children who are selected for a particular purpose harmed or treated as commodities? How far should the state interfere with parents’ reproductive choices?

Currently, concerns about the welfare of the child in selective reproduction have focused on the individual interests of the child to be born. This book re-evaluates the welfare of the child through the controversial topic of saviour sibling selection. Drawing on relational feminist and communitarian ethics, Michelle Taylor-Sands argues that the welfare of the child to be born is inextricably linked with the welfare of his/her family. The author proposes a relational model for selective reproduction based on a broad conception of the welfare of the child that includes both individual and collective family interests. By comparing regulation in the UK and Australia, the book maps out how law and policy might support a relational model for saviour sibling selection.

With an interdisciplinary focus, Saviour Siblings: A Relational Approach to the Welfare of the Child in Selective Reproduction will be of particular interest to academics and students of bioethics and law as well as practitioners and policymakers concerned with the ethics of selective reproduction.

Recenzijas

"Michelle Taylor-Sands new book cuts through debate by arguing that the focus of each of these opposing positions is unduly individualistic, and that we should instead focus upon the interests of the family within which the child will live." - Emily Jackson, Journal of Medical Ethics (2014)

"One of Taylor-Sands most interesting suggestions is that there might a difference between selecting a (future) child because it is congenitally deaf and some other forms of selective reproduction." - Wilkinson for Journal of Medical Ethics (2014)

"I think Taylor-Sands may be onto something with her claim that it is more honest to admit that many medical decisions are made not for the benefit of the patient, but because they confer enormous benefit on others at little cost to the patients themselves." - Gavaghan for Journal of Medical Ethics (2014)

Foreword xii
Acknowledgements xviii
List of abbreviations
xx
1 Introduction
1(5)
2 Selective reproduction: ethics and the law
6(34)
2.1 Introduction
6(1)
2.2 `Designer babies'
7(5)
2.2.1 Eugenics
8(1)
2.2.2 Slippery slopes
9(3)
2.3 Commodification
12(1)
2.4 Harm
13(7)
2.4.1 Risks of ART and embryo biopsy
14(1)
2.4.2 Risks associated with particular types of selection
15(2)
2.4.3 Better to be born than not
17(3)
2.5 Case study: saviour siblings
20(6)
2.5.1 The process
20(1)
2.5.2 Regulation
21(4)
2.5.3 Lessons from the UK and Australia
25(1)
2.6 A relational approach to the welfare of the child
26(3)
2.7 Conclusion
29(11)
3 The welfare of the child to be born
40(31)
3.1 Introduction
40(1)
3.2 Welfare of the child in ART regulation
41(10)
3.2.1 Origins of the welfare of the child provision in ART legislation
42(1)
3.2.2 Review of the welfare of the child provision in the UK
43(1)
3.2.3 Review of HFEA policy on the welfare of the child
44(2)
3.2.4 Review of ART regulation in Victoria -- a missed opportunity
46(2)
3.2.5 Should the welfare of the child principle be retained in ART law?
48(3)
3.3 Interests of future persons
51(1)
3.3.1 The future child as a `hypothetical person'
51(1)
3.3.2 Likely foreseeable or generic interests of the future child
52(1)
3.4 Respect
52(4)
3.4.1 Parental motivation for using PGD
53(2)
3.4.2 Parental love once the child is born
55(1)
3.5 Protection from harm
56(6)
3.5.1 Future donation
56(1)
3.5.2 Psychological and social harm
57(2)
3.5.3 Psychological and social benefits
59(3)
3.6 Conclusion
62(9)
4 A relational approach to the welfare of the child
71(25)
4.1 Introduction
71(1)
4.2 Families and human flourishing
72(5)
4.2.1 Nature of intimate family
72(3)
4.2.2 Role of families in promoting human flourishing
75(2)
4.3 Saviour siblings and collective family interests
77(4)
4.3.1 A shared family journey
77(1)
4.3.2 Are collective interests legitimate?
78(3)
4.4 Compromise within families
81(9)
4.4.1 Familial duty as a justification for individual compromise
82(1)
4.4.2 Membership as a foundation for moral responsibility
83(4)
4.4.3 Higher duty to family than strangers
87(3)
4.5 Conclusion
90(6)
5 A relational model for selective reproduction
96(33)
5.1 Introduction
96(1)
5.2 General family decision-making
97(5)
5.2.1 Parental duty and discretion
97(3)
5.2.2 Impact of familial character on family decision-making
100(2)
5.3 Necessary compromise and unacceptable sacrifice
102(7)
5.3.1 Limiting state involvement in family decision-making
102(1)
5.3.2 Respecting the child as an individual
103(2)
5.3.3 Protecting the child from harm
105(4)
5.4 Role of families in medical decision-making
109(6)
5.4.1 Position of the child to be born is analogous to that of a patient
110(1)
5.4.2 Medical decision-making involving families
111(4)
5.5 A relational model for selective reproduction
115(7)
5.5.1 Shift in focus from child to be born to family as a whole
115(1)
5.5.2 Modified collaborative decision-making process
116(1)
5.5.3 General features of a relational model for selective reproduction
117(5)
5.6 Conclusion
122(7)
6 Regulating saviour sibling selection
129(29)
6.1 Introduction
129(1)
6.2 Should we regulate selective reproduction?
129(6)
6.2.1 Regulating assisted reproduction
130(2)
6.2.2 Regulating selective reproduction
132(2)
6.2.3 Welfare of the child principle
134(1)
6.3 A relational framework for regulating saviour sibling selection
135(3)
6.3.1 Different regulatory models
135(3)
6.32 Clinical ethics consultation
138(9)
6.3.3 Outline of regulatory framework
140(7)
6.4 Differences from UK and Australian regulation
147(3)
6.5 Conclusion
150(8)
7 Conclusion
158(8)
Bibliography 166(15)
Index 181
Michelle Taylor-Sands is a senior lecturer in the Melbourne Law School at the University of Melbourne and has advised the Victoria government on assisted reproductive treatment. Michelle is published in the field of saviour sibling selection and the welfare of the child to be born.
Biežāk uzdotie jautājumi par e-grāmatām Biežāk uzdotie jautājumi par e-grāmatām
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